I just cannot believe the ignorance of the medical profession. Twenty years ago, after my first surgery, I figured the procedure was new, and I gave them a break. But today I have totally lost my patience and can only scream! Scream! SCREAM!
The rheumatologist I have been seeing for five years kept asking me today; “What happens when your gut is acting up?” I told her I just didn’t understand what she was asking. She said “Well, how much of your colon do you have left?” After explaining to her that I had a complete colectomy her reply was: “But didn’t they use some of your colon to make the pouch?” After five years! (Insert SCREAM here)
But wait! The nutritionist called me this week to discuss our upcoming consultation. She could not understand why I kept talking about absorption and hydration, the gastro that made the referral stated I had COLITIS! (Insert numerous SCREAMS here).
If anyone in the Hartford, Connecticut area knows of medical professionals that can really address the issues of J-pouchers,pleeeeaase, give me a clue. Please, Please, please!
Sorry if I hurt any ears!