Watching the clock tick away, waiting for the 12 o'clock hour for transport downstairs to endoscopy. I am scheduled for an EGD at 1 today. I have had this procedure more times than I can count, but it never gets any easier. I am a bundle of nerves. I just hope they can find the source of my current troubles.
Day 10 and I am still in the hospital. The CT scan and the EGD didn't show anything out of the norm, other than normal Crohn's inflammation. So they are clueless as to why I am experiencing such pain and illness. I just know I am getting very discouraged. I am losing my optimism and that's not something that ever happens in my life. I hate being sick and not having answers. I hate feeling out of control. I know my doctor believes me, but he is rather clueless as to what's going on and I am grateful that he is honest about not knowing how to help. He is always willing to seek out someone who can help. I am now having consults with palliative care specialist. That's something I'm not too keen on. Don't get me wrong, they are very caring and listen to all my troubles and woes, but they tend to prescribe too many meds for my liking. Pain pills to relieve the pain, another pill to energize you because of the the drowsiness of the pain pills. This time around, I told them, I will not go that route again. I am so frustrated and feeling so hopeless. So for me, at this point, life stinks.
I'm so sorry you are suffering so. You are the best place to be if you are feeling so bad.
I heard my C/R surgeon on the phone once talking to a doctor and explaining to him how he could do a certain surgery. The out-of-town doctor didn't think he was capable of the surgery. I'm thinking they should at least be contacting expert doctors. Plus you might even need to be transferred to a different hospital.
It sounds like you have a good doctor about recognizing when he/she needs help. My GI recently referred me to a Mayo clinic GI.
I hope they find out what is wrong and you get relief soon.
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