Horrid Joint Pain in hip area

Does it feel like arthritis pain that you had before?  Extra-intestinal symptoms sometimes return intermittently even post pouch.  Sorry -- this sucks.  Call your GI?  I am reading this like you feel like its in your joint.

best way i can describe it is to say that it feels like the spot where my leg and hip attach feels like its just bone against bone with a nerve trapped in the middle. 

If you feel it in your groin (front)-- and you had arthritis before you need to call your doctor. Do you still take UC type meds?  I guess there are a lot of things it could be if you didn't over do it with a work out. If you had arthritis before that would be my concern.  If I get hip pain (flare-ish related) it is burning and it burns like the dickens in my hips.  Nerve pain would potentially shoot down your leg, so if it is localized to a specific area its what it makes me think of.  I had bilateral hip pain 2 months after my TPC and it went away on its own but boy did it hurt.  Maybe someone else will weight in.  I am more conservative, so if it is something similar or seems in the joint I would call the doctor sooner rather than later.  Hope it is improving through the day.

Pinched never perhaps? That can be excruciatingly painful.

DG,

You are describing my life.

In my case I had a mild to intermittent pain that would calm after long walks and other physical activity (inflamation likes execise...it works better than pain meds on me)

Then one day about 2 yrs ago I walked up the hill to work carrying a ton of school books, lunch, purse etc (I was carrying everything unevenly off of my sides) and the next day it felt like the hip was on fire. I couldn't get up, sit down, turn over in bed, raise my leg up, bend etc...hell.

I tried massage, cortison shots, anti-inflamatories, pain meds etc...heat, hot baths...you name it.

It's been 30 months and I have never found steady relief. I get adjustments that help a lot and combined with PT massage and exercise I feel better but it has never goes away.

You need to address this quickly and see your doctor...maybe get x-rays to see if it isn't sciatica. (a huge problem with us)

My official diagnosis was sacroilitis. 

I live with it but don't like it. No cure, just treatments..

Sharon

any long term steroid use?  can cause severe joint issues all the way to necrosis, which my sister had

 

My hands are shot. I've been evaluated a half dozen times for RA, which my mother has. I APPEAR to have it but I don't. Every joint in both hands are ruined. My hands hurt all day and the pain wakes me at night. I can not take NSAIDS due to the J Pouch. Are you serious about the over use of steroids?!! That was Chico's answer for my troubles. At one point you couldn't even recognize me due to the weight gain, or whatever it was called. I couldn't even wear shoes. One of my doctors in San Francisco told me I'd never be put on steroids ever again.

I am absolutely serious about steroid use.  I had UC and my sister has Crohn's.  She was on steroids for four years and had to have her hip replaced at age 40.  I am not trying to be alarmist, but I believe in honesty and being informed. Here's a decent article:

 

 http://www.mayoclinic.org/dise...factors/con-20025517

I'm 5 weeks post take down, and I've had some connective tissue/muscle pain, but nothing major.  It feels like an injury (strain or a sprain), but I haven't done anything to cause an injury.  It usually only lasts about 24 hrs.  It seems to be decreasing though.  Right ankle was first, then left ankle, then right wrist, then left wrist, then right shoulder, then left shoulder.  No pain at all right now, so I hope whatever it is has played out.

I get it in my right hip, it's off and on but it really depends how my chronic pouchitis is acting, when I rotate meds my hip starts to feel better and it gradually starts to hurt again over time.

I've had hip pain, along with other joint pain, for well over a decade. I have enteropathic arthritis (a related disease of ankylosing spondylitis). A hallmark symptom is low back/upper buttock pain that persists for 3 months or more (sacroiliitis). The only thing that helped make it manageable was treatment with biologics, and exercise.

 

But, since your pain is not long term, it is probably too soon to think it is inflammatory. Still, if this does not improve soon, you need to have it checked out. My inflammatory arthritis caused accellerated osteoarthritis and I mow also have spinal stenosis and get nerve root compression easily.

 

Jan

I will throw his out there .. when I had a "leak" in my pouch, it appeared as if the fluids settled to the lowest part of my body. When I walked I had severe pain right at my ass, but it was inside the pouch.  When I laid down it felt better, seemingly, the offending fluid moved.

 

Just a thought, wondering if it is an internal abscess leak of some sort that could have settled in your hip area?  I hope this is not the case, hope it is something simpler and you're doing better!

 

 

 

I have had the same thing happen to me soon after my surgery.  One and a half years ago.  It stopped about six months ago and has started back up.  Just feels like the big bone on the outside of my hips are on fire!  I have to get up out of bed in the middle of the night and move around so it goes away enough that I can fall asleep again.  But... It comes back.  But after I am up and moving for the day it lingers some but doesn't come back fully until I go to bed and have slept a few hours. 
Never.. Ever had hip pain before my surgery.
I have no idea what it is and neither does my surgeon.  I'm not going to see anyone about it.  Tired of Dr's.  Only way I will go is if it immobilizes me!

I sure can understand not wanting to get it evaluated, especially since it is intermittent. I waited through more than 6 months of constant and increasing pain before contcting my doctor. I was trying to wish it away or assume I was just being a big baby.

 

Jan

I pretended for a long time that it was getting better or would get better soon...it did not.

Now I live off of nsaids, 1000mg/day with something to protect the stomach just in case.

As long as I can take them I will and will change to something else when I need to (and my rhumatologist agrees)...

Here they do not seem to like or know about biologics so I am on standby.

Never ignore pain. Get a consult and find out where you stand (no pun intended).

Sharon

I have taken three different biologics .  No after effects.  But it never worked on my uc.  Except my initial use of remicade.  That worked for about a year.  Anyways if asked to be put on them again I would not hesitate if it helps.
Richard.

Hy,when my UC was at worst I get sciatica. It felt awfull eccpecialy in my right hipp. They get me on Medrol (steroid tablet) and it went away. It was good while I was on them. But after year and a half I went to j pouch surgery and after it I was't on any medication. Now four months after surgery my sciatica is back at same spot right hipp. It is awfull. I wake up during night and exercise and in the morning I get up from bed for 15 minutes. If I sit or lie down for a long time I need to walk and exercise for 10 minutes. Becouse I have my ileostomy I can't go to my massager and do yoga and I am tottaly mad. I am going to hospital tomorrow and I will see with my GE what to do. I am sure in one thing no more steroids for me.

Hi branchy when I had my illeostomy it did not stop me going for my massage can't get by without having remedial massage once a month, the guy I went to had a toilet handy so I would empty it just as I went in,my guy was really understanding made me feel comfortable no embarrassing moments. Massage really helps to keep me moving.

I was on prednisone for six months and  ended up with osteonecrosis.  The pain started in my left hip five years ago.  I had stem cell surgery on both hips and both shoulders  in 2011.   I'm fine  most of the time now four years after my surgeries.  It was my colon and rectal surgeon who made the diagnosis.

Theresa

I had my surgeries in 2011 and 2014 (related hernia repair). I have been experiencing increasing back pain despite the L2-L5 fusion that started my j-pouch journey and about 6 months ago I stared having moderate to severe pain in my left hip. Lately I'm getting similar pain in my right hip as well. I am on 2 different meds for cholesterol and suspect one, or both as contributing factors.