I have a parastomal hernia. Went to MD yesterday and he doesn't recommend surgery since I'm not having trouble with intubation. Has anyone had a hernia repair? Any advice or opinions would be greatly appreciated! Thanks!
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Brandiw,
Yes, yes and yes...I had my first post valve revision and it grew...if it is a real peristomal hernia then it can release the tension of the muscle around the stoma and cause your valve to slip out...which means that you may lose continence...I did not have problems intubating because of it...my whole valve fell out! (I just pushed it back in each time)...my k pouch surgeon tried to opperate from the outside in and fix it that way but it didn't take so he ended up doing full surgery on it because it had opened up too much...
Later on I had repeat hernias and my general surgeon here fixed them through laporoscopy and a mesh fix without opening me up...they held beautifully. I honestly reccomend having it done that way. It is 2 days in hospital, 1 week off work tops and it prevents things from degenerating.
In the meantime...no major lifting/pushing/pulling etc.
Sharon
Yes, yes and yes...I had my first post valve revision and it grew...if it is a real peristomal hernia then it can release the tension of the muscle around the stoma and cause your valve to slip out...which means that you may lose continence...I did not have problems intubating because of it...my whole valve fell out! (I just pushed it back in each time)...my k pouch surgeon tried to opperate from the outside in and fix it that way but it didn't take so he ended up doing full surgery on it because it had opened up too much...
Later on I had repeat hernias and my general surgeon here fixed them through laporoscopy and a mesh fix without opening me up...they held beautifully. I honestly reccomend having it done that way. It is 2 days in hospital, 1 week off work tops and it prevents things from degenerating.
In the meantime...no major lifting/pushing/pulling etc.
Sharon
I would like to have it repaired before I have problems since my dr is 3 hours away. It's stressful thinking about not being able to I intubate if it gets worse. He did say it would be a laporoscopic procedure, so I'm glad to know the recovery is quick. Thank you so much for the info!
Go for it and get it done...much easier than worrying all of the time...
Sharon
Sharon
I agree! Thank you,I really appreciate your input!
Brandi
Brandi
Hello,
I had a k pouch done this past June 2011. As of a few days ago I have been having difficulty intubating. I have tried 3 different catheters, different positions, etc. Last time I intubated - it went right in. Now, again, it is not going in. Sat night, I tried for on/off for 10 hours! I was about to go to the ER when (Finally) it went in. Since then, it takes on average 20 mins now! I thought I was in the clear today (been using a heating pad) but the problem is happening again. I emailed Dr. Remzi @ Cleveland Clinic & all they told me was go to the ER if I can't intubate (duh). They did give me a number for the ER docs to call should this happen. I am so scared & worried. Can anyone help me with advise? Is this normal? A fluke? Or am I going to have to have surgery again. Of course, when you ask the docs its always the same reply (Everyone is different). Do they teach all Dr.s to use that response in Medical school? Seriously...
Please if you have any advice, I would appreciate it.
I had a k pouch done this past June 2011. As of a few days ago I have been having difficulty intubating. I have tried 3 different catheters, different positions, etc. Last time I intubated - it went right in. Now, again, it is not going in. Sat night, I tried for on/off for 10 hours! I was about to go to the ER when (Finally) it went in. Since then, it takes on average 20 mins now! I thought I was in the clear today (been using a heating pad) but the problem is happening again. I emailed Dr. Remzi @ Cleveland Clinic & all they told me was go to the ER if I can't intubate (duh). They did give me a number for the ER docs to call should this happen. I am so scared & worried. Can anyone help me with advise? Is this normal? A fluke? Or am I going to have to have surgery again. Of course, when you ask the docs its always the same reply (Everyone is different). Do they teach all Dr.s to use that response in Medical school? Seriously...
Please if you have any advice, I would appreciate it.
Did your doctor talk about leaving the tube in and capping it for a while? When I was having a lot of issues inserting my catheter I did this until I could see my doctor. I would call your doctor and ask if he recommends this. It is a little bit of a hassle, but it greatly reduces the stress until you can see someone who knows about your surgery. Just be very careful about what you eat and chew the heck out of everthing. Best of luck, it is scarey when you are not sure if you can intubate.
By capping it I meant cap the end of the tube until you need to empty your pouch. I did this instead of wear a bag. I liked it better, but others may like the bag better.