@Jan Dollar - I wanted you to see this
I've been here so infrequently and only posted once over the last several years. But I may be back to vent a bit more going forward. I'm not sure yet.
Quick history: I was diagnosed with UC at age 12 (1981) and had flares every 7 years or so. I could typically manage with sulfasalazine and nothing else until I was 36 (2006). Then I had TFTEAF (The Flare To End All Flares) and landed in the hospital on Feb 6th for 18 days, and left with an ileostomy and no colon. I had several more surgeries that year and have now been the proud owner of a j-pouch for almost 16 years.
Then: In 2009 my older daughter was 6 years old and was diagnosed with UC. She was in the hospital twice between 2009 and 2011, and was admitted to the hospital the second time 5 years to the day of when I was admitted in 2006 - on Feb 6th, 2011 (weird, right?). She was there 8 days, and left with an ileostomy, no colon, and an unconnected j-pouch. She had her takedown 2 months later and has been the proud owner of a j-pouch for 11 years. She is 18, almost 19 years old now.
Today: My younger daughter told me this past Tuesday night that she feels bloaty all the time, sometimes has reflux if she's standing upright and bends forward, and has had bloody stool... for about 6 months. She's 13, almost 14. No, I didn't berate her for waiting so long to tell us because it doesn't matter. Took her to the family doc today and he did blood work. Her hemoglobin is low-normal so she's doing okay, but the doc said she needed to see a pediatric GI and get a colonoscopy. He said, yep - you probably have ulcerative colitis given your dad's history. No surprise there. First available is in May (also not a surprise - they are slammed at our Children's hospital), but we got a telehealth appt. on March 10.
Poor girl. At least she still feels pretty good, although she has been sick with other things this year more than in the past (she rarely gets sick). We have seen her more fatigued than she ever has been - coming home and going to bed and sleeping for hours after school about one night a week. Of course, she is 13/14 too.
So there you have it. We won't know for sure it's UC and not something else (there are, of course, other possibilities) until she's scoped and all the tests are done. But looks like my girls and I defied the %s and the odds. My wife does not have IBD and no history of it in her family that we are aware of. So the 10%-25% chance of my kids getting it... may actually be more like 100%. I told my mom that I hope my girls feel like having me for their dad is worth all the bad genetics