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My son had his second takedown on Jan28.  Except for having a blockage, everything went fine!  We were all excited and happy and feeling confident that everything was good. Wrong!  He Is still on oxy, complaining of lots of pain. Had a CT scan last Friday, he has another abscess in exactly the same spot as last year!  Its a small collection but a collection just the same. I cant believe this. They didnt see a fistula but i believe its just too small see yet.  Just like we went through in Dec 2014.  Right now we are waiting to hear from our surgeon who is away. The covering doc put him on an antibiotic for now but they will be doing another drain by the end of the week. When will it end!

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Oh my! Hopefully this is just the old abscess reforming because it was never totally eradicated. If there were some surviving bacteria (or spores if it is anaerobic). If his resistance was beaten down (and it likely was), the abscess could relapse. When I had my presacral abscess, I had the drain for a month.

Fingers crossed this is just another bump in the road (damn it)!

Jan

Sonny, it probably is just a partial obstruction. Drink lots of fluids, stop any fiber and bowel slowers, and keep moving. You should be OK. But call your doc if you develop a lot of Bdominal pain.

Jeff'sMom, 

"A gas forming organism" is likely of the clostridium species, which are anaerobic coliforms and are spore forming. C. difficile is an example, but don't panic, there are many clostridium species.

Jan

so I wonder if he is developing abscesses presumably from a fistula, have they thought about amending his diagnosis? I realize you already have too much on your plate but here's the thing that an amended dx might bring, a biologic med that help preclude any further trips down this road.

on first blush disappointing as one thought hey I'm done with meds now that ive sacrificed my colon, but the reality of improved quality of life by squashing more fistula formation would be the positive trade off.

I had my j pouch 14 years ago and doing OK.  First, this sounds like Jeff has a pretty complicated situation and he seems pretty young for this surgery.  So, his situation is probably pretty unique and many suggestions may not apply to him.  Because it's so complicated, i.e., those that i have not experienced, i have only marginal suggestions.  First, i recommend getting in touch and talking with the surgeon and making sure he knows what's going on-exactly and that he needs to help.  He should know best what's going on and should be on top of it.  

Second, if and when you take down again, i recommend a lot of imodium (loperamide) to slow things down.  Ask the doc, naturally, about its use, etc..  Gradually, you can taper off or slow down, but i still take them now and then and overnight, etc.  I think some people take them regularly.  Any time there's a flare up or problems, they usually help settle things down.  

 

WillR6, thank you for your kind note.  Yes, my son is young to be going through all,of this.  It's sad.  Last May he was diagnos d with PSC on top of everything else. So he is a very complicated case.  He seems to get all the worst complications.  

We will be speaking with his surgeon tomorrow. He has been away this week.  We went in to see his associate yesterday just to make sure this abscess was not making him sick.  The doctor was going to put him in the hospital if he was running a Temp.  Fortunately he was not.  So right now we are in a holding pattern and we'll see what comes next.

it never ends!  

As on right now, the plan is to insert a Rectal drain.  I really don't know how he is tolerating all of this.  Everything is so painful and invasive.  It will take a week or two before this happens.  Apparently IR is slow!  So we wait, I guess!  Thank you everyone for your input and suggestions.  You guys keep me a little bit calmer.  There are times I feel like we are alone in this journey, but then, I come here, and don't feel alone at all!  Thank you!

Hmmm... When I had to have a drain put in by interventional radiology, it was done the same day as the diagnosis and done on an emergency basis. I didn't return from radiology until after midnight. But, maybe things were different for me, as I had a very high fever.

My surgeon was even out of the country on vacation and just consulted by phone. They did not wait for him to return.

Jan

Jan, i know. When we were in NJ it was done that day as well. But we are in NY now and thing do work differently. Jeff does not general run fevers so thats a good thing. They want some additional blood work done before IR will even give us an apt. Which right now is just fibe because husband and i are going away together for the first time in five years. Generally when i go away i go alone. He thinks he will miss something at wirk if he takes off, LOL. Workahalics get on my nerves! Life is too short!

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