Skip to main content


I was wondering if anyone has experienced Hemochromatosis. I had my J pouch construction done in 2005. I currently had an MRI of my spine and something showed up on my liver and I have elevated liver enzymes. They suspect hemochromatosis. I’m waiting to see a hematologist. I just didn’t know how serious this was. I had to quit my teaching job because of the chronic fatigue and all the complications from my jpouch. Just looking for any insight. Thank you so much!

Original Post

Hey, sorry things aren't great for you at the moment... I don't know anything about hemochromatosis I'm afraid, but have you looked into Primary Sclerosing Cholangitis at all?

It's an auto-immune condition of the liver with strong links to IBD... I get severe fatigue with that too and my liver enzymes are constantly off the charts..

Sorry if that's not helpful at all.. good luck with getting a diagnosis and look after yourself 😊


Add Reply

Copyright © 2019 The J-Pouch Group. All rights reserved.
Link copied to your clipboard.