Have incontinence from Anus

DianaTMember

I don't understand what the normal procedure is when going from a J-Pouch to a permanent illeostomy! Shouldn't the opening for the Pouch be somehow closed up so that poop does not come out of the rectum? I am still having a substantial amount of poop coming out of my rectum as well as into my Ostomy Bag! Someone please help and tell me what to do as pain is now coming back to my bum which is the reason I went to illeostomy to begin with! I had developed many burning, painful, unbearable ulcers down there from so much diarrhea and was told I needed to get a permanent illeostomy which I did and am now in worse shape than before.

1/20/224:39 PM

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Scott FMember

Diana, do you know what sort of ileostomy you have (loop ileostomy or end ileostomy)? Some surgeons remove the J-pouch (and sew up the anal opening) when reverting to a permanent ileostomy, but that can be a difficult surgery. Sometimes the J-pouch is left in place.

1/20/225:01 PM

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DianaTMember

He left the J Pouch and rectum intact but told me now that the only way to stop the rectal incontinence is to have JPouch removed which is a very invasive surgery which requires a long recuperation and does not advise it!

1/21/228:34 AM

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AMBMember

I didn't even realize that incontinence could be an outcome of pouch reversal. If it was me I think I'd schedule a consultation with another surgeon. Most if the best ones at the main colorectal surgery centers who do revisions will schedule a second opinion as a video conference. I hope there's an answer for you.

1/23/229:46 PM

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