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I have her ebook that is called "The IBD remission diet" and it's really interesting to read. It will give you so many other ideas and options to try. I also have her ebook called "Wild Oregano Oil." To be honest I'd recommend both of them to anyone who has an inflammatory bowel disease.

They don't specifically talk about people who have a j pouch however I still think that an enormous amount of the information is relevant and makes a lot of sense to me.

The other thing you can do is look up some of her YouTube videos. She has videos on all sorts of different topics and you will get a feel for whether you like what she's on about and the way that she communicates.

Lately I have been playing with what I could call an elemental diet. She has lots of information about it in her book. I make up my own elemental diet. She makes pre-made shakes that you can purchase  however for me this seemed like an incredibly expensive option so I opted to buy all the ingredients and make them myself. The main difficulty with this diet is compliance because it's a really tough. However when you feel really sick that can be incredibly motivating. I only managed to stay on it completely for 8 days but in that time my migraines settled massively and I was able to go onto a half elemental diet which included some regular food.

I have toyed with well.

grateful, that's a funny way of using the gel capsules. As you already bought them you can take one during a meal. As the food will remain some time in the stomach you can be sure the capsules will be dissolved by the acid there. For increasing the dosage if you feel ok with it have a look at the package.

If you want to switch to pure oil there are several recommendations in this post, or use the forum search (magnifier glass symbol in the header line) with 'oregano'.

Hi All,

I have been doing oregano oil with elemental diet for 6 weeks now and for some really strange reason, my Calprotectin levels have gone UP to 500!

I am following Jini Patel and using Natren probiotics, bone broth, elemental shakes and WOO for 6 weeks now for chronic pouchitis - my night time incontinence has stopped and my iron levels have stabilized. I am still eating 1 meal per day which consists of protein, fats and small amounts of carbs.

Has the Calpro levels gone up due to the body detoxing? I am currently on 12 drops per day (6 drops twice per day).

Regarding oregano oil, I bought it at the recommendation of some people in the group. I bought capsules from the brand ReThinkOil. They actually made me feel a lot better and I thought it might have fixed my pouchitis, but then I went for a routine pouchoscopy and was told I still had severe pouchitis, which I was disappointed to hear. So far I've always had to take antibiotics to get rid of it. I hate Flagyl, it leaves a terrible taste in my mouth, but this time I got Xifaxan and had no side effects.

Hi so I have my pouch over 20 years now and pouchitis from day 1.

I have tried everything listed here plus making my own kefir and fecal transplant. Damn pouchitis would always come back, in fact 6 years ago I had to disconnect I was so sick. No antibiotics would work.
so it was lose my pouch or try Entyvio. Remicade almost killed me. I cried and cried but I was not losing this pouch. Here I am 6 years pouchitis free later and still going strong. Good luck. I have some friends that never had pouchitis. I’m one of the lucky ones I guess.

@FelixGust posted:

What therapies have you tried and did they have any effect?

I I have red book by Jini Patel Thompson called "listen to your gut." It is about healing ulcerative colitis ,Crohn's, diverticulitis and IBD. Unfortunately I didn't read this book before I had my colon removed. However I use a lot of the principles from it to help me with bits of my daily life now.

I have had a couple of episodes of pouchitis and have used a combination of wild oregano oil, psyllium, bentonite clay and a soft diet that is easy to digest. I have cured the pouchitis both times without the need of antibiotics. I just have started another episode of pouchitis so I will be interesting to see whether it works again this time.

I feel that for me there maybe a link between candida and pouchitis. I feel that if I feed my gut with sugar or carbs this makes everything worse. So I go sugar free and massively reduce my carbs and then try to get the candida under control. This includes using high strength probiotics. I wonder if anyone else has any ideas that don't involve antibiotics?

How much of each (wild oregano oil, psyllium and bentonite clay) do you take?

I  use psyllium everyday. I often make-up shakes that I drink 2 or 3 times a day and I put about half a teaspoon in each of these shakes. The psyllium helps me not to have constant diarrhoea and to bulk up the store store.

The wild oregano oil varies depending on my symptoms. I will copy and paste a little bit of information from one of her books for the IBD remission diet. She also has a small publication you can get online call the "Wild oregano oil protocol" and this will give you far more information

WILD OREGANO OIL • If you sense you also have an intestinal infection (and if you have IBD or IBS you are highly likely to) you will benefit greatly from using Jini’s Wild Oregano Oil Protocol to kill off these pathogenic microoorganisms like yeast, fungus, bad bacteria, mycobacteria and viruses. In that case, you would do Jini’s Wild Oregano Oil Protocol first and then follow with the high dose probiotic supplementation. This will kill the pathogens much faster than just using probiotics alone.

Wild oregano oil is an extremely potent natural anti-bacterial, anti-yeast, anti-fungal, anti-parasitic and anti-viral substance. It is extracted from a particular species of oregano that grows wild in rocky regions of the Mediterranean and has only been used in North America since the early 90s, when Dr. Cass Ingram published his landmark book on wild oregano called, The Cure is in the Cupboard. As such, it is a relatively “new” herbal medicine in the US and not many naturopathic physicians are even fluent in its uses and amazing efficacy. I expect it will gain momentum quickly in the coming years and like all really effective herbal medicines the Food and Drug Administration (FDA) will probably try to ban it before too long!

Most of the scientific research on wild oregano oil is currently coming from the Applied Microbiology field in the area of food preservation. Microbiologists have found that wild oregano oil is so powerful that even minute amounts of it can kill common food-borne pathogens responsible for a lot of the food poisoning incidents with processed food. When I first introduced wild oregano oil to my readers back in 2005, its use with gut disorders was not widespread. However, since then, among my readers alone, thousands have tested and used this herbal extract to rid themselves of intestinal infection. I have used it on myself and my children since 2002 – and I can personally confirm its efficacy for a wide variety of applications involving infectious microorganisms. More recent research has even confirmed wild oregano oil’s ability to eradicate mycobacterium avium paratuberculosis (MAP) – an extremely tenacious pathogen that has been identified in up to 92% of Crohn’s patients (see Appendix B for references).

What To Look For in a Brand

It’s very important to use the correct species of oregano, as different species contain different levels of the principle active ingredients: carvacrol and thymol. Please follow the specifications here to ensure you get the desired results and don’t substitute brands unless they can meet the same criteria (confirmed via an independent lab assay), or you will not see the same results. When purchasing wild oregano oil, make sure you get:

Species: Oreganum vulgare

Subspecies: Hirtum is one of several that work well

For wild oregano oil to be effective, it must be high in naturally occurring carvacrol (ideally 75% or more) – not just have extra carvacrol added in later. If you get a brand with the correct species and subspecies, this will not be a problem. Effective, good quality wild oregano oil should also be low in thymol. Thymol is a naturally occurring compound in oregano oil that must be present as it works synergistically with carvacrol. But, too much is hard on the liver, so check that levels do not exceed 5% maximum. For my brand recommendations, see my LTYG Shoppe.

The dosage given for wild oregano oil in this Protocol is for oregano oil that has already been diluted in a carrier oil (most brands are) like olive oil. Five drops of diluted wild oregano oil is equivalent to one to two drops of pure, undiluted, essential wild oregano oil. If you’re using a brand other than the ones recommended here, check carefully to see whether it’s been diluted or is an essential undiluted oil. Remember to always dilute pure (undiluted, essential) oregano oil in a carrier oil before using internally or externally, or like all essential oils, it can cause tissue damage. The brands I recommend have already been diluted with olive oil, so you don’t need to dilute them further before using in this protocol.

Okay, now that you've got some background on wild oregano oil, here's how you need to take it to eliminate any intestinal infection. Wild oregano oil is also ideal for people with IBD as – although it feels “spicy hot” in the mouth – it is also an anti-inflammatory and is used topically with burn patients.

Jini's Wild Oregano Oil Protocol

• Take 10 drops of wild oregano oil, three to five times a day. I prefer taking it on an empty stomach for maximum efficacy, but it is not necessary. While on the elemental diet, you can take a dose and then 10 minutes later have a shake or some broth. For some reason, numerous readers have found the liquid drops work better than the gel caps – but you can use either. Again, you will need to ramp up gradually (start with just five drops, one to three times a day) and adjust the dosage and frequency to what your body can handle. As you clear pathogens, you will likely be able to handle more.

• Then, just before you go to bed at night (and a minimum of two hours after your last dose of wild oregano oil) take a full dose of probiotics: one teaspoon of each of the three probiotic powders (Megadophilus, Digesta-Lac, Bifido Factor). Extensive experimentation by myself and thousands of readers has shown that you need to combine wild oregano oil with probiotics to get the best results and also avoid unpleasant side effects – so do not skip this vital step.

• Continue on this dosage protocol for three weeks (or longer if your intuition guides you that way), then implement the probiotic supplementation outlined above. If you have a tenacious infection (like mycobacterium avium paratuberculosis – MAP) you will likely need to cycle on and off this protocol every three months or so, for up to two years. So let your body be your guide. The Easiest Way To Take Liquid Wild Oregano Oil Wild oregano oil feels “spicy hot” when you swallow it (or when it touches any mucous membrane). So, the best way to take it is to first take a sip of water and hold it in your mouth, without swallowing. Fill the dropper with 5 to 10 drops of wild oregano oil, tilt your head back and shoot the contents of the dropper into the mouthful of water at the back of your throat. Swallow. Then immediately follow with lots of water or juice, and keep drinking water till the heat sensation disappears (about 10 seconds). Even my daughter, Zara, could take liquid wild oregano oil using this method when she was only five years old. In fact, you can watch Zara demonstrating the easy (no burning!) way to take wild oregano oil in this video: (Or go to YouTube and type in “Jini Patel Thompson” and it will pull up my channel.)

Alternatively, if you like a hot burning chili sensation, then just shoot the five drops directly into your mouth and enjoy! Remember though, that wild oregano oil is anti-inflammatory and used with burn patients, so although the herb presents in this “hot” way, it’s true action is more complex and healing/soothing. Warning: Do NOT use Jini's Wild Oregano Oil Protocol unless you follow it with the probiotic supplementation described above. If you kill off all the pathogens in your gut, but do not replace them with good bacteria, you run the risk of opportunistic infection. Your Candida albicans (yeast) population will also explode in the absence of good bacteria to keep it in check, so you must follow with therapeutic-quality probiotics at a high dosage.

Hi, I am wondering how you did with your pouchitis after taking the oil of oregano, clay and probiotics? I am hoping to avoid another biologic for my recurring pouchitis and fistulas.

I have been on the oil of oregano and natren probiotics for 6 weeks but recently had to take cipro/ flagyl for 10 days which worked only while I was on them.

I just started taking diatomaceous clay and humic fulvic acid as recommended by a Chinese medicine DR.

I have been following scd diet (as much as I can) and possibly lower my fructose intake as well for a while.

Any updates are much appreciated! Thanks

I think it's really hard to compare like-for-like when we are all doing different things with our diet. The first time I tried this protocol I did a really intensive regime with the oregano oil of taking it 5 times a day for a number of weeks and probiotics at night just before bed. At the same time I went on an elemental diet to get all of my nutrition in a liquid form that was very easy for my body to digest. This gave my bowel a rest.

There is a whole booklet on elemental diets that Jinny Patel Thompson wrote. You can either buy her products which are really expensive or she gives you all of the ingredients in this book so that you can source them yourself and make them up, which is what I chose to do. The difficulty is that it is incredibly difficult to stay on this diet because food is such a huge pleasure in our lives and the willpower needed to not eat anything is quite intense.

My subsequent efforts have not been nearly as effective because I find it very mentally challenging to put myself back on a complete elemental diet. So I opt for a half food half elemental diet. Unfortunately I still suspect this seeds my candida Overgrowth to some extent. If I get really bad I will then have the motivation to go back onto the full elemental diet. Being really sick can be very motivating in that way

@katenet posted:

I take 800 mg of egcg green tea extract which was recommended by my doctor. I take it daily for the past year.

I have used charcoal tabs (no help) licorice extract (helped for awhile) marshmallow root and slippery elm ( no noticeable help) and acupuncture (lots of help).

This site has a couple of oregano oil threads here that might be helpful to research.

Hi Kate,

Are you still taking EGCg?  Do you think it helps?  800 mg is 2x the amount they say to take on the bottle.  What is your weight?  I'm contemplating starting this regimen and I wonder if I would take the same amount as you?  I weight about 110 lb.  Also do you take the 800mg at once, or 400mg 2x/day? 



@katenet posted:

I remain on the EGCG with really no impact on the pouch. I think it helps with my gum inflammation and mouth ulcers however I don’t know . Last pouchoscopy showed (stable) chronic inflammation-

EGCG can’t hurt it’s likely doing nothing but i remain optimistic

Thanks for your reply!  Do you still take 800 mg, and are you the same weight as me?  I don't want to cause myself liver damage, but I don't want to take such a small dose that it doesn't do anything.

It was actually information I was given from another I-poucher. He said it helped tremendously. To be honest I’m not surprised. Cabbage juice helps heals ulcers and reduces inflammation. I plan to try it. I just bought a juicer. I deal with bad pouchitis and always end up taking Cipro to get it under control. But, per usual, it comes back. The Cipro is destroying my Achilles tendon tho. Hurts just to walk on it. Not to mention all around a very hardcore drug. So if I can find something other than Cipro to help, I’m all for it!

Good luck with trying this remedy. I will be very interested to hear how you go with it.

Incidentally I find that for me, pouchitis  is very linked to my sugar consumption. I have managed to get rid of my pouchitus multiple x by removing sugar from my diet, using wild oregano oil and then supplementing with probiotics. I also avoid alcohol and stimulants as much as possible. As soon as I go off the bandwagon a bit and start over indulging I noticed the griping start sto come back.

I have taken Augmentin for pouchitis which doesn't have the risk Cipro does of tendon rupture. For me it was great and had no side effects. The pouchitis came back after I took it for 4 weeks but I'm still feeling better than I did before I took it. I may have to be a low dose long term. For me it's the best antibiotic. Flagyl gives me a bad taste in my mouth and Xifaxan doesn't work. The oregano oil also makes me feel better but doesn't cure pouchitis.

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