What therapies have you tried and did they have any effect?
I I have red book by Jini Patel Thompson called "listen to your gut." It is about healing ulcerative colitis ,Crohn's, diverticulitis and IBD. Unfortunately I didn't read this book before I had my colon removed. However I use a lot of the principles from it to help me with bits of my daily life now.
I have had a couple of episodes of pouchitis and have used a combination of wild oregano oil, psyllium, bentonite clay and a soft diet that is easy to digest. I have cured the pouchitis both times without the need of antibiotics. I just have started another episode of pouchitis so I will be interesting to see whether it works again this time.
I feel that for me there maybe a link between candida and pouchitis. I feel that if I feed my gut with sugar or carbs this makes everything worse. So I go sugar free and massively reduce my carbs and then try to get the candida under control. This includes using high strength probiotics. I wonder if anyone else has any ideas that don't involve antibiotics?