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@ytcrockpot posted:

Omg yes!! Not inpatient just the ER. 4x last year, 2x this year already. As I get older it gets worse. 
I had heat exhaustion in 2017 which scared the shit out of me, since I was in a NYC subway station and passed out. I feel like I’m always on the edge of dehydration, one wrong move and I’m in the ER 

Oh my! I am glad you are okay. You might want to start drinking more water- before, during, and after meals. That helps me stay hydrated. I have 3 snacks a day and 3 meals a day- I drink water with every meal and snack. Try that method

Once. 

The first time they released me from the hospital. 

But I had a temporary ileo at the time.  I wasn't home a day and boom!  Back in for two week hospital stay. 

That taught me quick to drink alot. All the time. 

No. It's not due from age. It due to not drinking enough water! 

By the time you notice you may be dehydrated it's too late. 

I drank six to seven bottles of water in an 8 hour shift at work. I worked outside in pretty hot weather. 

Now. I just down a bottle of water even if I don't think I need it. I do.  Just plain water.  

Passing out in a subway would not be fun. Ouch.

P. S. 

Thanks for the reminder..... Just drank a bottle. 

Last edited by Mysticobra
@Mysticobra posted:

Once. 

The first time they released me from the hospital. 

But I had a temporary ileo at the time.  I wasn't home a day and boom!  Back in for two week hospital stay. 

That taught me quick to drink alot. All the time. 

No. It's not due from age. It due to not drinking enough water! 

By the time you notice you may be dehydrated it's too late. 

I drank six to seven bottles of water in an 8 hour shift at work. I worked outside in pretty hot weather. 

Now. I just down a bottle of water even if I don't think I need it. I do.  Just plain water.  

Passing out in a subway would not be fun. Ouch.

P. S. 

Thanks for the reminder..... Just drank a bottle. 

LOL! You are soo funny! I love it hahaa! And yeah, I drink about 2 gallons a day. Always drink before your thirsty

I’ve only dehydrated when I had the temporary loop ileostomy; in fact I dehydrated twice per month, every month over 6 months; each occasion resulted in emergency admission into Hospital by ambulance for IV fluids 

I also suffered from renal failure, which luckily, was treated in time before lasting kidney damage occurred.

My potassium level was also dangerously low.

I dehydrated to such an extent, as apparently, due to the loop ileostomy, there wasn’t enough small intestine to absorb my fluid intake, despite how much I was drinking.

Since takedown, I’ve had no serious episodes of dehydration, although I do suffer from fatigue, which I believe is either a salt or magnesium deficiency, maybe both rather than actually dehydrating 

@strange posted:

I’ve only dehydrated when I had the temporary loop ileostomy; in fact I dehydrated twice per month, every month over 6 months; each occasion resulted in emergency admission into Hospital by ambulance for IV fluids 

I also suffered from renal failure, which luckily, was treated in time before lasting kidney damage occurred.

My potassium level was also dangerously low.

I dehydrated to such an extent, as apparently, due to the loop ileostomy, there wasn’t enough small intestine to absorb my fluid intake, despite how much I was drinking.

Since takedown, I’ve had no serious episodes of dehydration, although I do suffer from fatigue, which I believe is either a salt or magnesium deficiency, maybe both rather than actually dehydrating 

Potassium and magnesium are electrolytes- when they are low, you are dehydrated. Might want to try supplements

Potassium and magnesium are electrolytes- when they are low, you are dehydrated. Might want to try supplements

 Not necessarily so.
During my bouts of dehydration; Doctors advised, I observe the colour of my urine as an indicator of dehydration, thus a pale colour ideal and to urinate no less than 3 times per day; however, a dark colour urine and urinating less than 3 times per day = dehydration.

However, I urinate often through-out the day and I drink fluids to such and extent that the colour of my urine is clear.

I also consume a home made electrolyte solution 3 times per week;, devised by the WHO and recommended by St Marks Hospital, London, which consist of Salt, Glucose and Bicarbonate Soda mixed with 1 litre of water with a fruit flavouring.

i also ensure to eat food that’ are high in potassium, such as bananas and baked potatoes, although not together.

@strange posted:

 Not necessarily so.
During my bouts of dehydration; Doctors advised, I observe the colour of my urine as an indicator of dehydration, thus a pale colour ideal and to urinate no less than 3 times per day; however, a dark colour urine and urinating less than 3 times per day = dehydration.

However, I urinate often through-out the day and I drink fluids to such and extent that the colour of my urine is clear.

I also consume a home made electrolyte solution 3 times per week;, devised by the WHO and recommended by St Marks Hospital, London, which consist of Salt, Glucose and Bicarbonate Soda mixed with 1 litre of water with a fruit flavouring.

i also ensure to eat food that’ are high in potassium, such as bananas and baked potatoes, although not together.

Sounds like a perfect regimen!

@strange posted:

Yet I still suffer from fatigue and episodes of my sleep pattern being disturbed; hence, sleeping when I should be awake or awake when I should be sleeping; otherwise life with a J pouch is absolutely wonderful.

Most j-pouchers do. I get up overnight to poop too. Maybe try naps when you can. I am glad were okay though, our treatment plan is way better than active UC. 

I don’t get up during the night to poop or urinate; when I’m sleeping, whether it’s at a more appropriate time or during the evening. I can easily sleep through and without disturbance for a good 10 hours.

  Even after a good nights sleep, the lethargic feeling isn’t the desire to go back to sleep; even if I did, I wouldn’t sleep; it’s more a feeling of not having the energy or desires to do things I want to do and having to push and force myself to do the things I have to do; which makes the feeling even worse, but still, I don’t have the desire to sleep.

Then on the occasions, when my sleep pattern Is messed up, I become so tired at specific times of an evening, that I can’t stay awake; despite drinking all kinds of fluids throughout the day, the St Marks emix solution, as well as eating Bananas and salty snacks.

I’ve had my J pouch for 5 ½ years and prior to that, for 9 ½ years, I had a stoma and colostomy bag; and I never suffered from this level of fatigue.

Last edited by strange

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