It is so frustrating that ER docs and GP's even many GI docs do not know very much about our anatomies and the complications thereof. And many nurses are at a total loss! I don't mind providing education and explanations when I am well but it is hard cramming in a course on j pouches, pouchitis, cuffitis, etc. when I am really ill. I am a widow so I don't have a spouse to be my spokesman. Do any of you have a good way of dealing with this lack of knowledge and awareness?
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