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Hi everyone from Australia,

I would like to hear from people that have had a fecal transplant as my 4 year old grandson, currently in remission from cancer will shortly be going through this procedure. His chemo has caused alot of gut issues, resulting in him having an extremely limited diet. He has also suffered alot of different stomach/bowel virus and infections, and had c.diff for a long long time.

We now feel that a fecal transplant could be his last chance of getting a healthy gut and would love to hear of any experiences you may have had such as

Is the procedure painful or uncomfortable?

Did it result in having to run for the toilet or is it well tolerated?

How long does the procedure take and how often/many procedures are needed?

Was the procedure successful in your situation and did it have a lasting effect?

Thanks for your help

 

Heather

 

 

 

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I had a fecal transplant 2 years ago at age 35. I had chronic c diff infections that were no longer responding to antibiotics and landing me in the hospital every other month. I’ve also had ulcerative colitis for 7 years but was told the fecal transplant likely wouldn’t help the UC, but should keep me from getting c diff again. The transplant was done during a colonoscopy so I was out from anesthesia and it took them about 45 minutes. There was no pain afterwards, just some drowsiness.  I had to take Imodium before the procedure to try and hold in the transplanted material as long as possible. It worked and I didn’t have a bowel movement for 48 hours. I had immediate relief from the c diff symptoms and have not had another infection since! It was totally worth it and I hope your grandson gets similar results!! Good luck! 

Hi Boxermama,

Its good to hear that this procedure really helped you, gives us alot of hope for my grandson. He has a very limited diet due to his gut issues and this could be the answer to his problems because nothing else is helping him.

His first transfer was due this week but now its been decided he needs antibiotic treatment first to kill off any bugs so he has the best chance of it working, so it has been postponed but should get underway very soon

He wont be having an aneasthetic for the procedure, 10 in all apparently, in fact the clinic is talking about showing my daughter how to do the procedure herself at home 

I hope your c.diff never comes back as its a horrible infection. Fortunately I never had it in the 23 years I had the Jpouch due to UC, now on end illeostomy for past 2 years due to adhesion complications

Thanks for your help

 

Heather

 

Hi Heather,

I had a fecal transplant a little over a year ago also for C diff , after other treatments didn’t work. I am doing fine now. There is really no recovery from the procedure, just takes a bit of time to get well from the illness you already had. They put me under mild sedation for just a few minutes and implanted it with the scope!

Went  home in a couple hours. By the way, I have had a K pouch for about 2 and a half years now and seems it is rare to get Cdiff in the K pouch, so far, so good though.

Also, it cleared the infection, but no changes in my bowel or digestion, which I was told before hand that it would not likely help any of that.

Only difference that may be a change is I gained about 10 pounds and am constantly hungry!!! The gain is probably due to no longer having diarrhea all the time.My donor was my husband , so I just blame everything on him hahaha.

Very best of luck to your Grandson, at his age he will probably be running around that same evening. I’m sure all of us will send you good thoughts .

Janice

 

 

Dear Janice, thanks for your reply and I'm glad you've had a good outcome, and don't we all blame our hubbies, thats their role in life

I wish I could get a Kpouch or BCIR but can't get private health due to UC but very few surgeons do it here and you have to be insured so just have to accept staying with the end illeostomy

My daughter has been given the poo injections to give to her son after he finishes the present course of antibiotics so were all hoping its a cure for all his gut problems mostly due to the chemo he was on.  His diet is very limited, same food all day, every day and home cooked, he notices now his friends at Kindy have a much more varied diet, so of course feels left out, he has eaten some of their food and this has resulted in alot of stomach upsets which lasts weeks, its as if the chemo, constant antibiotics, plus other drugs, plus radiation have trashed his gut so this could be a chance for him to get a much more varied diet

Hopefully my grandson will be running around full of energy after the transfer, and thanks for your kind thoughts

It should start happening soon so its fingers crossed

 

Heather

 

 

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