Hi, everyone. I just wanted to post good news, and I am hesitant to do so: 1. because I realize many people have issues, and 2. no such thing as a guarantee of the future! I have a had a "redo" j-pouch for, I think(?) two years now and I'm doing very well. When I am active and busy, I think I go to the restroom about four times a day! (Funny, when I am thinking about it, I go more often!) I can usually sleep all night (late night snacking and a bit of alcohol are a guarantee I have a 3:00 am BR visit.) I am riding bike, playing/coaching basketball and trying to remain active at 56. I fly cross-country on business often with no issues, whatsoever! Yes, there are some things that I need to prepare for or keep in mind (emergency undies, butt soothing cremes, etc. I might add that I like the men's urinary incontinence pads backwards -- not sure how much better, but the packing is more manly. (ha, ha.)
I am sorry to say that I don't post often on the board, but want to balance the fact that most people use this very valuable forum to help them with an issue, but there are lots and lots of people like me who are healthy enough to "get on with their lives," and leave the board behind. Almost like we "graduate," but we ALL deserve to graduate, and nothing I personally did deserves a better outcome than anyone else!
This board was a godsend to me, and so were the long-timers (so, so knowledgeable!) who helped me through rough times. Kudos and thanks to those of you that offer such great advice and friendship to all of us in need.
Isn't it great that we can have a site like this that can support people from all over the world with such a unique disease and loss of all/part of a colon? For those of you that are in the midst of surgeries or having issues, I've been there and I hope you all the very, very best!