I posted in more detail in General Discussion, but the short story is that I will be having my pouch removed and a permanent ileostomy constructed. I am actually looking forward to it as I cannot continue living the way I have been. Very sad to lose my pouch, which always worked well, but the repeat & extensive fistula damage is too much.
Having said that, I need to hear the life with a perm ileo is good... I've had a lot of problems with the temp ileos I've had, but those have all been loop ileos, so I think the permanent is different because it is an end ileo, yes?