Has anyone gone from having a j-pouch to getting a permanent ileostomy?
I've had my j-pouch for just about 5 years and have had constant pouchitis and have had just under 10 blockages. I have had scopes done that my doctor couldn't get through the top part of my j-pouch multiple times. I've tried flagyl in the past, but have not wanted to stay on it because of the side effects, plus it began to not work after my second round of it. I've been going to the bathroom nearly 10 times a day for years and have constant leakage at night to the point where I have to where a diaper just to get stuff on the bed.
I'm just tired of the run-around and wondering if anyone else has suggestions or if an end ileostomy might be the best option. I actually did very well with my ileostomy last time and didn't mind it. It was nice to have a "normal" life again.
So any thoughts would be much appreciated.