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Hello,

I have had my J-Pouch for 9 years now with no issues...I have been considering having a Gastric Sleeve procedure as I have a lot of weight I need to lose. My Surgeon said it was ok as it does not modify digestion only the stomach (reduces the size of stomach 85%). Has anyone on here with a pouch had such a surgery or heard of anyone having this type of surgery with a pouch? Trying to be careful and do my research before making a decision
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Don't DO IT!!!!!! I have a sleeve. I got mine back in 06, way before I lost my colon. Life is hell and I need that added gut for digestion many days. Any doctor that says it is safe after losing a colon is insane.

I also have the risk of dying of cancer if it returned. I can't ever have a whipple surgery either because of having it done. So if I get cancer in the duodenun I am screwed.

I would do a lapbad since that can be removed or reversed. BUT it it is very very hard to live without this much stomach and a pouch.

Also with a sleeve you face a life of small bowel bacteria overgrowth. Shen at CC has explained it all to me.
I am having my lapband removed because of all the problems it has caused.... after losing almost 100 lbs with it, I got deathly ill because of it, following my jpouch surgery... it has been inside for almost a year with no filling...any time they try to fill it, I start vomiting foam. My doctor won't even consider a lapband anymore, and he said Cleveland Clinic and many other reputable hospitals won't do them either. He said the sleeve is my best option. I'm thinking that since I got my Jpouch first, and not the other way around, that it should be ok. Plus I don't have FAP.
I am sorry but even if you don't have FAP it still will grow SIBO and if you think having just pouch issues is a pain. try having dumping non stop and SIBO. I will most likely awlays be on antibiotics. And anyone can grow bowel cancer not just us people with FAP.

Sorry but no sane doctor would suggest removing 60% of a stomach after colon has been removed. It puts you at so much risk. My friend got a jpouch and they reversed her gastric bypass to help with digestion.

Do you really think this even sounds normal to do? Come on now. Weight loss should never be at a high price with the sleeve, to pay with issues you can never reverse.

What if the person doing this got pancreatic cancer down the road and needed a whipple procedure? You are not a candidate to get a whipple if you have a sleeve and a colon yanked.
I know a lot of my friends in Paris have had the lap band or sleeve surgeries done...obesity is rampant in certain populations and it is not acceptable in Paris to be overweight let alone obese...about 1/3 of my friends who had the lap bands have had to take them out within 10 yrs, most did well the first months and managed to maintain the weight loss for for a yr or 2 but eventually the pathology that caused them to over eat in the beginning caused them to stretch the residual stomach and eventually loosen it or have it removed. A few had the sleeve surgery after that or knowing themselves well enough started off with it...but it is not a quick fix...this is still surgery on the digestive tract...and requires a lot of effort both physical and mental to maintain it.
Most of us have discovered that this disease has severely thrown off our eating habits and metabolisms along with our strength and activity levels...the only thing that really works for most of us is the good old fashion 'reduce intake/increase output' method...less fat and sugars and more activity...even a 10% increase in activity and a 10% decrease in intake with start to show results quickly and you don't need surgery for that...I know how hard it is to control your body and how we hate it when we feel like we can't get rid of the weight but better to go the safe route than to punish your body with more surgery.
Sharon
I have gained and lost 100 lbs more times than I care to remember. Years of steroids have destroyed my metabolism. I'm in menopause and have hypothyroidism. The old 10% rule does not work any more. I go to curves three times a week and have counted calories, fat grams, carbs, you name it, for years. With all due respect, if you have not walked in my shoes, please don't presume you know what is best for me.
I would not presume anything Ollie, Really, I do understand.
As a pre-ado (between 9-11) I was on mega doses of steroids and looked like the goodyear blimp. Not fun trying to start junior high that way, worse still trying to loose the weight.
I have fought with my weight my whole life. My mom was a serial dieter and went from liquid shakes to grapefruit to lemon juice-maple-syrup-cayenne pepper fasts and beyond. I did them all with her and my system paid the heavy price.
The day that I decided that I never wanted to diet again as long as I lived I started to gain control. I may not be skinny now (far from it) but I am in control.
I understand the frustration, anger at your body, the need to find a solution to a problem and the fear that you will never be able to do it alone.
If you want the gastric sleeve and you have a doctor who garentees that you will not suffer undo consequences because of it, that your system will not become undernourished, over taxed etc and that with a pouch you will be all right, then fine...but don't forget that life is a long-term game and it would be a shame to cause your body more harm than good.
Your stomach is responsible for a big part of the digestive process but only really absorbs sugars, alcohol and some other molecules, the big part of the absorption takes place in the small intestine.
I hope that if this is the option that is right for you then it provides you with the solution that you
hoped for.
Good luck no matter what you choose.
Sharon
olliegram,
I know exactly what you are talking about. I have hypothyroidism and became obese because of prednisone. I tried to lose it everyway I could for 14 years leading up to my j-pouch surgeries and could never loose more than 20-30 lbs. I gained that weight back. I went to an endocrinologist for cortisol testing. In reviewing my blood tests he asked me when the last time was I took prednisone and I told him 10 years ago. He was puzzled as my according to my blood work it looked like I had quit taking in around a month previously. I wish I would have asked him what in my blood work made it look that way but I was in shock. Years later I had my j-pouch surgeries. I'm down 70-75 lbs from my pre-surgery weight and need to loose another 15-25 lbs. I've hit a plateau.

My thyroid has been out of control since the surgeries the last 3 years, mostly being way too low. I have other health problems and I asked my Internist about gastric surgery before I needed my j-pouch surgeries. She said no doctor would touch me. I'm assuming since you've got the approval that you are healthier than I am.
Thing is the weight comes back on. I eat 1k in calories a day and I am up 40 pounds. Now I diet like anyone else. The digestion part alone is hell. I use immodium to help slow it down. Food is in my pouch in 8 minutes or less. Always starving from such fast transit time without a colon. So it is the total opposite years down the road. Big no.
I know! If only someone scoped my bum before I had my gut cut out. It was great in the beginning then the honeymoon is over and you have to work. I form SIBO due to the gut part being removed, Shen said without that part of the stomach there to help digestion, bacteria forms more in the gut and trickles down into the pouch. Keep your stomach, eat paleo and do crossfit ;-)

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