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 I may be facing gall bladder surgery. I’ve had my pouch 26 years. I have a damaged sphincter post-fistula surgery/incontinence and a spinal cord stimulator which helps some with the incontinence, along with take Immuran & antibiotics to control pouchitis and codeine and psyllium to also help manage the incontence. I do reasonably well, functionally. As I wait to get a final diagnosis, I may have a harder time with diagnostics since I can’t get an MRI with the stimulator, so hopefully ultrasound or CT will seal the deal.

Any specific things I should be worried about or be sure to talk to the surgeon about regarding my anatomy/not letting anything happen to the pouch? I worry the surgery could also be complicated due to possible adhesions?

Not excited about potential surgery, but thoughtful planning sounds better than ending up with emergent surgery given unusual anatomy.

Apprecite anything thoughts about what should be on my radar relative to gall bladder surgery with a pouch-thanks!

 

 

 

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I had my gallbladder out before my J pouch surgery so I can’t say for sure if it would impact your pouch. But, I do remember that the gallbladder is way higher than your pouch. The incisions were in the same area (laparoscopically) as when they did the colon removal laparoscopic. Recovery is prob way easier than the pouch surgery. I’d ask your doc if you have questions but I think you’ll be just fine! Good luck! 

Well, after procrastinating on the gall bladder for at least a year and a half, with continued attacks, and my routine scope a year late, I finally got my pouch scoped and saw my GI down at Rochester Mayo. I mentioned my gall bladder issue aamd how Is been procrastinating scheduling with a surgeon and he referred me to an experienced surgeon down there who mostly operates on people with “weird anatomy”. Had it out in June-it was A lot tougher and longer than they were expecting, due to adhesions (they did lapro) and I had 9 stones all >1” diameter, so they did have to make about a 2” incision through the muscle in order to remove the bag with the massive gall bladder, but my recovery went great, and no pouch issues! Between 5 new scars and my midline and ostomy scars, my belly looks like a roadmap, but I’m happy it’s all taken care of!

Now to stay COVID-free despite back-to-school approaching!

I had mine out after years (over 30) of putting it off and suffering uselessly.

My general surgeon did it through Lap and found a meg-gallbladder ready to burst...drained a quart of black bile before he could remove the stone and pull the darned thing out. 

He also took advantage of the visit inside to lyse some adhesions and unstick a loop of bowel (a triple header!).

A bit longer recovery than usual (I need 3 nights in and a week at home) but I regretted waiting so long to do it.

Some of us feel phantom pains afterwards. I have had 3 ultrasounds for pain and they cannot find anything obvious but it could be something stuck in the common bile duct...they say it might be gravel but it does not show...my fault for waiting so long...I suspect?

Good luck and don't worry...this should be the 'easy one'.

Sharon

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