Duck, various folks here have written about using a catheter to empty their pouches. There’s plenty of variation, but some of them have described using a bulb syringe (essentially a turkey baster) to irrigate the pouch, squirting water in to facilitate emptying. Just inserting a catheter will only work if the pouch contents are fairly liquid. If stuff has been stuck in your pouch for a while then it’s unlikely to still be liquid. Do they even know if there is stool in your pouch?

The key diagnostic question is where things are getting hung up. I still suspect the malpositioned pouch.

Hi all. I had the discharge meeting today with my surgeon. They think the pouch needs to come out. There is no information from any scans that suggest why this is happening. The malpositioned pouch on defocography wasn’t  much of anything apparently, all the CT scans have never shown any narrowing/strictures/wall thickening and the motility and pathology tests are clear. They’ve been about as thorough as they can be I think.  They said sometimes pouches do this? They suggested we try a temporary ileostomy to see if it makes a big difference, that way I don’t lose it for nothing if it ends up not helping. They can also check for rogue adhesions etc. that may secretly be causing problems. I still wonder about that given I have endometriosis and all the scarring that comes with that. I feel Ok with this plan, it will be a long road, but with a light at the end of the tunnel. Thanks all for your support through this!

The temporary ileostomy sounds like a good way to go. I suspect it will give you immediate relief from your symptoms, and it will allow you to get back on your feet. If you like it, you might want to keep it permanently and you can keep the pouch too, so there wouldn't be any more surgery. Most of the time once the pouch is "disconnected" it stops causing trouble. Since you've already lost your colon, the ostomy surgery isn't too bad, so recovery time is fairly fast. I'm hoping this is the "miracle" you've been hoping for. One more thing. When I finally lost my pouch, I felt that I was giving up. Don't feel that way. You're not giving up. You've tried everything available, and now you're moving on with your recovery and your health and your life. Good luck.

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