Hey Fellow Pouchers,
Let me first say God is Good!! Ok so let's get into this. I'm looking for some guidance on a decision I have been considering lately. So hopefully those that have experience can share some knowledge and wisdom with me. Being the recepient of a Bratlike JPouch that never seemed to want to cooperate since day one after many struggles with strictures, blockages, and my biggest problem fistulas that have almost put me in the grave from infections I told my Dr last year to give me that bag that has been the only thing that has kept me healthy and happy. Since a year ago until now my temp ileostomy has been wonderful. I went from a mere 130lbs standing 6'1 to now 205lbs where I should be. Anyway the biggest issue I have experienced that has been a complete nuasance is an extreme amount of fluid that come rushing out of my bum mostly at night. I literally have had nights where I changed my underwear 3 times that were soaking wet like I wet swimming with them on. It happens during the day also especially when I'm active. There is a faint smell but more watery than anything. Sometimes I get a brief moment of pain where I have to rush to the toilet but that doesn't happen often. I know from the procedures I've had in the past that the pouch is still diseased with pouchitis. I set up an appointment to talk to my Dr next week about going to a permanent ileostomy. From the research I've done on this site and others people have raved about how much better the perm is rather than the temp. So with all that said I'd like to hear experiences on the surgery itself, the recovery time, and most importantly any issues that I may need to be aware of as I consider this decision. Thank you in advance my pouch family. God Bless!!