Skip to main content

I only got to see Dr. BoShen once so far and although I would love to do so again I didn't win the lottery yet and the trip is hard on the budget. He tried to explain to me why I am the way I am but with all the amount of info I was taking in during that appointment I should have brought a tape recorder.

he had a theory and seemed to think it made some sense that with my pouch as old as it is and my PFD as bad as it is that I no longer have frequency...not with either my bladder or my pouch chronic inflammatory problems.

Is there anyone out there that has heard of this and has an idea what he may have been talking about since I am getting frustrated with my current doctors. It seems to be a road block in their understanding of what may be going on.
Original Post

Replies sorted oldest to newest

I haven't been to Dr. Shen, and your case seems pretty unique. Have you tried emailing him and asking him for the short version of his theory? Another approach would be to ask your current docs to get your records from Cleveland Clinic, or contact Dr. Shen for his input. You also can request copies of your records from there for your own personal file. Those approaches approaches may be better than trying to piece it together from others' experiences.

Still, hearing from others might jog your recollection. Good luck! I hear pelvic floor dysfuction can be a real bugaboo if it does not respond to physiotherapy.

Jan Smiler
Katrina,
It's been awhile since you posted and hopefully you have figured things out. However, I had seen Dr. Shen five years prior to an email I sent to him. I was having some concerns so emailed him and we exchanged emails for a couple of days and guess where he was.............China. This was unbelievable to me but this is the kind of doctor Bo Shen is. I was so grateful that I sent him a few dozen of an assortment of homemade cookies. He emailed me back at how much he appreciated what I did. Great person and doctor.

Add Reply

Post
Copyright © 2019 The J-Pouch Group. All rights reserved.
×
×
×
×
Link copied to your clipboard.
×