? for oldtimers

I've had my pouch since 1997. I was 16 years old when I got it, and went through the late teenage invincibility that I no longer needed my surgeon, so I haven't seen him in about 15 years...

I totally commiserate with the gas pains you are referring to... I still to this day, get them on occasion so badly that it takes my breath away... It normally only lasts a few hours for me... As much as I never remember eating anything strange, I have tied it to eating too much corn, or too many raw fruits and veggies without eating some "simple carbs" as well... I'm a pescetarian so I eat LOTS of veggies...

Overall I've done wonderfully with the pouch, but in my experience there are occasional pains and issues to deal with. Not sure if its the BEST advice, but to me it seems just par for the course and I'm still doing great 15 years later!

I've had mine for 33yrs...(a k pouch: same pouch, different exit strategy)...for about 20yrs after the 3rd & final pouch surgery I was pretty good...I had bouts of pouchitis that were controlled by flagyl, dietary disasters that caused 'hiccups' in my pouch's life but other than a K pouch related problem (pouch fell off of the wall and had to be reattached)I was pretty good...there are pouchers that do fine 'forever' and others that don't...as my dad said, 'don't expect the worst but be prepared for it'.
Sharon

GOOD MORNING

Thank you both for responding,I know there will proably be espisodes on and off.This last one came out of no where,I was doing so well.

I never thought I see the day I be well again

Thank you again for responding.

I am happy I made the one year mark,

Cassiecass

Could you have had a little bug or gotten a little food poisoning? I know there are times when I blame my pouch for things, but before I had UC and before the pouch, I still had times where I would eat things that didn't agree with me, so I wonder if some of those times it's not necessarily the pouch.

Glad you made it to a year and you are feeling better again!

I am 1.5 years out and doing well, too.

Morning

Not sure,I experienced the same symptoms I went thru all year.
I started to feel real good in August.This is why I asked the question to the oldtimers.
I been till last week doing so well
Never thought I go thru it all again.

Thank you for your input.

Cassiecass

A J Pouch will not immunize you from food poisoning or gastrointestinal viruses and these events can hit very, very hard......and that is what it sounds like especially if you were vomiting. It's a huge problem going through these events because a J Poucher will dehydrate rapidly (in my case it happened to the point of passing out). The event itself would have happened whether you had the J Pouch or not. But having the J Pouch adds the risk of dehydration which will make you feel worse than you actually should feel as a result of the condition.