Fistula... May be crohns??

Hi
I'm not sure if this may help you or not. I have a lot of your symptoms, burning anal canal, pouch ulcers, frequent pouchitis, but have had my pouch for four years with no fistula sand hence no crohn's diagnosis.  I question this as I have a lot of the symptoms if peri anal crohns with discomfort   in my anal canal all the time. I am getting pouch scoped on 5:26 and can report back findings.  I often take cipro on and off for these issues.  Often it seems the fistula diagnosis and ulcers above the pouch lead to a crohn's diagnosis.

I'm no doctor but since your surgery is so recent I'm more inclined to think the fistula is a result from the surgery. Although I can't speak of the ulcers that were found. I had a fistula that resulted in a huge abscess after my first surgery. I was very fortunate that it healed quickly (within three months) and I was able to have my takedown surgery. I suppose time will tell for you....best wishes. 

Hi!  My son had his take down in September of 2014.  We are not sure exactly when, but sometime between then and Noember developed a huge fungal abscess and fistulia.  We know that the fistulia was connected to the pouch and that explained the abscess.  But like I said, it was fungal.  In December they put in a drain in his back to drain the abscess.  In January they found the fistulia and immediately but him on light bowel rest.  No food, just clear liquids by mouth and put him on TPN.  Introvenus feeding for 8 weeks.  The fistulia still did not clear up so in March 2015 they reversed him again and put him back on the colostomy.  Hopefully with complete bowel rest, the fistulia will clear up and they will do the takedown again.

 

good luck

 

dianne

I had a fistula 5 years ago. Had surgery to remove it. Never had any problems with the fistula since. I've had a batch of  scans and cameras twice since and have not got crohns.