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Hi there, so it's been 13 months since takedown and all was going well until a few weeks ago things changed ever so slightly that made me suspect Pouchitis. All the symptoms in a moderate form. I took cipro for 9 days and during that time felt better than ever. My questions are now that I'm off cipro a few days I'm not as good as when I was on but not that bad to start up again. Do all j pouchers feel better w antibiotics even if Pouchitis is not suspected? Should I feel the same now (off antibiotics) as I did while I took them? I never realized that I could do better than my new normal which I was happy about. Does this mean Pouchitis may have been simmering all along? Maybe time for the annual scope..does scoping detect Pouchitis?
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Maybe time for the annual scope..does scoping detect Pouchitis?


In cases of chronic pouchitis yes, see the attached scope pic taken in June 2012. I have had pouchitis since 1995 treated with rotating antibiotics.

It should be noted that I was "simmering" for a long time but still showing inflammation on scope albeit not as bad as in 2012. Since 2012 I was scoped again last month and was slightly better than this.

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I've only had pouchitis once and took Cipro for it. After I finished the Cipro Rx I didn't feel well; although I didn't feel pouchitis-y either. In my case I had a Cipro hangover which my surgeon said was normal. Give yourself a few days and if you're pouchitis symptoms don't regress, you too could just be suffering with a Cipro hangover.

Sue Big Grin
In addition to the above, yeah, taking antibiotics even without pouchitis can improve your function and make you feel better. There are two reasons for this. One is that they usually reduce the stool output/volume (because much of our output is bacteria). The other is that you can have bacterial overgrowth without having pouchitis.

If you are due for an exam anyway, I'd suggest scheduling a scope before requesting more antibiotics to see what, if anything, is going on.

Jan Smiler
Jan, can you get too much bacteria from probiotic bacteria? I know it's good bacteria but I was of the opinion that there was never too much good bacteria.

Then I remember back to when we had tropical fish that were sick. My mother was giving them their medication and thought if this will make them better then more will cure them faster - they all died.

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