Feeling lost

I can say that my pouch had some activity during my ileostomy days, but those "disappeared" at takedown time, try not to worry too much about it, it could means nothing big, perhaps your bottom was greatly inflamed during your UC days and now it is not fully healed, but in case the pouch is still healthy and you could use topical steroids (if something else doesn't work) to treat that area. Pyoderma disappeares, more or less, always, when the underlined disease is treated. So be positive eat as clean as possible, and perhaps let you prescribe some iron as I suspect you are anemic because of your fatigue. (I take a brand called tecnofer which is super, but don't know if it's available in your country).

 I'm getting that horrible feeling of feeling like I need to push to pass something but nothing passes, some urgency, abdominal cramping here and there also,

i've had these symptoms also.  this is a tough order, but the lowFODMAP diet has helped tremendously.  it doesn't resolve the pouchitis, but minimizes the symptoms, which in turn makes me more comfortable.  look under lowFODMAP diet in j-pouch section for links to info on diet.  good luck!  jlh

Hi sally!

Ok, that's not the best situation, I agree that I didn't bleed nor that I had diversion colitis when I had an ileostomy.

But still, you should be positive regarding what will happen, you can treat the pouchitis and / or diversion colitis there are many options.

Did they prescribe something til now? Or just waiting the reconnection?

I don't know if anyone bled at that stage but perhaps they trusted their doctors (I know it's difficult...) and didn't worried too much. You said that you see the water red as it's full of blood but you have to hypotize that it's just some tiny drops of blood which are just coloring too much transparent water, you don't need to think its huge amount.

Did you have any blood work or can you let prescribe one?
It would be interesting to check your iron ferritin and crp levels, in order to see how much you are suffering from blood loss anemia.

How much is the "diversion colitis" as they call it aggravated? Did they say light, moderate or severe?

Last, you say you need to empty the pouch and you have bad feelings, but I'm sure that everyone waiting (myself included) the takeover, did have to empty at least two times per day and it should be considered normal.