Ugh so my son is the hospital for stubborn pouchitis and who knows what else. Doing blood work, testing for cdiff and cmv, tomorrow going for mri and pouchoscopy. Checking for stricture, fissure, chrons, the whole 9 yards. Already tried cipro, flagyl, xifaxan, Entocort, hydrocortisone enemas, probiotics, nothing is helping. Poor kid is in pain every time stool hits the rectal area, has to strain, not feeling relieved, bleeding. Every time we try a new medicine we have to wait to see if it works and he is suffering while waiting. Now they are talking about biologics. Remicade didn’t work when he had a colon. Not sure why they think it will work now. Then what if biologics don’t work. What’s left? Sorry for the rant. Feeling terrible. I just don't see a light at the end of the tunnel anymore.
I'd like to hold of on the biologics as a last resort. Because I really don't know what else there is to do if those fail. I asked about 5-asa meds either oral or rectal but Dr seems to think those are not as effective. I will NEVER, EVER do prednisone again as it never helped him when he had a colon and he had every single side effect, even these horrible stretch marks on his back that now look as if he was whipped. Just can't stand the waiting and watching him suffer.