Is it normal to be extremely fatigued with pouchitis? I am so tired I could sleep 24/7 and it is fatigue that overwhelms me and it's hard to function. I quit my full time (away from home) job in February and got a full time stay at home job because I thought maybe the stress of being so tired and having to go to work was just making my fatigue worse. But since I've been home, the fatigue has worsened. My primary doctor even put me on Adderall because I can't focus on my job. While Adderall does help, I am still tired. I had my scope done about 1 month ago and it showed inflammation so my doctor ordered stool cultures to be done, checking for parasites or c-diff. I'm still waiting for the results because I had to do the sample twice because the lab messed up on the testing. Ugh! In the meantime, my doctor did not want me to start on Cipro until the results from the stool samples were back. I am struggling! I NEED to work (financially). I keep thinking I am going to end up on disability but my husband would never understand that and I wouldn't even know where to start. The fatigue makes me depressed too and then the depression makes me tired so its a vicious circle. Also, I have hemmoroids (I guess) and they are a extremely large and itch real bad (sorry for the description). I don't really like my doctor so calling him about this is a mute point. He's very cold and when I mentioned I guess I have hemmoroids because I can feel them, he didn't even remark on it. He just looked at me and kept on doing what he was doing. Ugh! Is all this normal? The fatigue? Hemmorroids that I can feel on the outside? Sorry for the long rant. I'm at the end of my rope on this!
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get another doctor! Yes, Pouchitis makes my husband tired. I can't believe that you have to wait a month for results. My husband's doctor puts him on antibiotics even before the results come back and gives him refills if it comes back. Also, try VSl, that seems to help stave off Pouchitis.
Yes, if you have pouchitis, if you are dehydrated, if you are suffering from malabsorption...all of these things can lead to exhaustion and depression (plus the roids do not help you one little bit and make life a misery)...please find a doc that is willing to listen, talk and treat you correctly, if at all possible (and according to your insurance)...This is not normal and should not be your life.
Depression, on the other hand, is often a temporary part of our post-op situation...sometimes it is immediate and other times it slips into our lives when we least expect it. It could be a sign of PTSD, it could be physical or it could be our body's and mind's way of processing everything that we have just survived. It takes time.
If you have normalized the physical problems and it keeps on going then you need to ask for assistance from a professional but I have found that really good nutrition, hydration and supplements go a long way to helping me get good quality sleep and once I get my sleep cycle working (often insomnia and broken sleep can be the cause of depression) the depression sort of naturally lifts.