Fallopian tube infection due to scar tissue

LB GreenvilleMember

It has been 17 years since I received my J pouch and have had virtually no issues with it. However three weeks ago I ended up in the emergency room with severe abdominal pain on my left side where I could not sit up because of pressure and pain. Two ER trips later, I was finally diagnosed with a serious infection in my left fallopian tube that had also moved to my right tube although it was not as bad. I was told that it was brought on by Scar Tissue that has wrapped itself around my tubes from the surgery. I am hopeful that I will be able to kick this infection with antibiotics even though they make me feel horrible. I am trying to avoid surgery at all costs as I do not want it to mess up my J pouch. Has anyone experienced anything similar? I'm well aware that the scar tissue has caused infertility for me and I accept that is just part of having the pouch for me. I'm just wondering if anyone else has ever had this problem and if it was an ongoing issue. Or possibly if anyone has had surgery to have scar tissue removed and how that went negative or positive. Thank you! I am 38 years old about to be 39 I don't know if that makes a difference.

4/23/1611:33 PM

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Jan DollarModerator, RN, retired

The only remedy I have heard of is removal of the tubes, and often the ovaries. The scar tissue (adhesions) is like stcky rubber bands that embed into the organs. Difficult, if not impossible, to remove. If the are only a few of these adhesions, surgical release might be possible. If you are lucky, this will be a one time event and you won't need to worry about it.

Jan

4/24/161:01 AM

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skn69Member

I am so sorry LB,

It sucks...every time that there is a complication related to our other problems.

I had salpangitis in '91 about , 12 yrs after my pouch surgery. It was due to an ectopic pregnancy that had gone undetected. (calcified)

They did a Hysterosapinograph (sp???) to diagnosis it.

They put me on massive doses of pain meds and antibiotics for 3 months but it didn't help.

I had a great general surgeon and Obsgyn. They did minimally invasive surgery, actually repositionned my k pouch that had fallen off of the wall, Opacified my tube (they cut it open and 'flatten it out', clean it out and allowed it to heal that way.) The they put me on progesterone for 3yrs to stop my periods.

I was still hoping for a normal pregnancy at the time so this was a great solution.

In the end it was much less invasive then full pouch surgery and even though I was weak (probably due to the infection) for a while I bounced back quickly.

I never managed to have a kid (not for the want of trying...and did manage a few failed preganancies...At least they tried and so did I.

Sharon

4/24/165:05 AM

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