After 22 years, my j-pouch needs to come out. I have severe pouchitis with ulcers and friability . I had the pouch disconnected 3 years ago and got an ileostomy which really helped me feel better for a while, but recently the remaining disconnected pouch is now severely inflamed causing high volumes of mucous drainage, spasms and pain. My surgeon says I am also at a higher risk of cancer.
I have to have the remaining pouch excised and have the "Barbie Butt" surgery, also known as abdominal perineal resection. I would like to hear from people who have had this surgery and how their recovery went. I am looking forward to a much better quality of life, but am concerned about this operation and the time to full recovery. Anything you can share would be appreciated!