I've had my j-pouch for 5 years and recently starting having chronic scar tissue problems. The surgeon/GI know that there is a band of scar tissue floating around outside the upper intestine, but not obstructing. The symptoms aren't severe enough to warrant surgery, and I have had scopes/tests done that show that nothing else is wrong. My system seems to slow down/get blocked during the day (less gas than I used to have and a fair amount of distension), and after lying down for a few hours in the evening, I finally start releasing gas. The distension then goes away. Some days are worse than others.
The new status quo is pretty inconvenient and prevents me from getting much sleep because I'm constantly getting up to go to the bathroom (both gas and stool) from 10pm to 1am. I wake up feeling fine, and the cycle starts again.
Does anyone have tips on how to mitigate this type of gas? Does anyone have experience correlating these types of symptoms with stress?
VSL #3 has helped but I am hoping there is something else out there....I drink lots of water and eat no fiber (I can't, due to scar tissue). Bad days don't correlate with any particular foods. I don't eat dinner because I have a stomach emptying disorder that makes me feel nauseous if I lie down after eating.