I have tried Humira -- and it never got into my bloodstream so the doctor discontinued it.  A couple years later I tried Remicade  - and they say there were antibodies and the medication never got into my bloodstream either.  Now, the doctor suggests I try Entyvio.  He also prescribed Cholesteramine, which I haven't really started yet.  

Any suggestions or am I just wasting time with all this?

Original Post

Finding an effective treatment can be time consuming, disheartening, and exhausting. It is not, however, a waste of time. A failure of one treatment rarely implies that a different treatment will also fail. Patience with your body will likely get you to the best outcome. You are worth the effort.

Thanks for the reply Scott. I haven't met too many people who had a one-step total colectomy like me.  I would like to hear more about your 2002 surgery. 

The surgeon offered me one- or two-step J-pouch options. He warned me that my time in the hospital would probably be about the same with either approach. I chose a single stage procedure because I was flying in from out of town. I did have an uncomfortable, ten-day hospitalization, but went back to work in about six weeks. I was lucky that I had close family in the area, and I stayed there for an extended visit during my post-hospital recovery. As for the procedure itself, I slept through it. I’m told that it was completed astonishingly quickly. I’ve been very happy with the result, in spite of developing chronic (antibiotic-dependent) pouchitis around 2008/2009. I’m up to two antibiotics, and if those fail I’ll probably have to start trying biologics. 

I've been on it. We did a check after I had been on it a good while, and just before my every 8 week IV, and there wasn't much in my blood stream. The doc upped it to every 6 week. He did another check after I had to get iron again, and there wasn't much in my blood stream. I told him let's just call it with all this stuff. I did the Remidcade and the Humira once a week, and let's just call it. He talked me into doubling the Entyvio to 600 mg. every 8 weeks since it is supposed to be a 8 week medicine. My feritine is currently at 8.1, and here I go again for IV's of iron, but I have only had one IV of the new amount, and that was on January 23rd. I asked him before we started about where do we draw the line as to if this works or doesn't work. He said 4 IV's or 8 months. So, i'll either skip it all or go on the Stelara, which I believe is self administered injections like the Humira, but only every 12 weeks.

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