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Hello Everyone,

I know this question has been asked several times but still can’t find an answer. Looking to find anyone who has had success with Entyvio and pouhitis/inflammation?  had my first infusion on 10/23/23 and have just felt awful since. Can barely do anything, been in bed going on 6 days now, headaches. Just not sure the side effects outweigh “it might help” I’m still on budesonide which is a miracle drug for me.

i know every one is different, i read the studies, but I seem to be having a hard time finding success stories for people that have inflammation/pouchitis on Entyvio.

42yrs with my pouch and this is what I have to look forward to! Not a happy camper. I never thought I’d ever say thinking about a reversal, but if biologics is all I have, the thought has crossed my mind.

Thanks for any info you can provide.

Last edited by ytcrockpot
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Hi, I just heard about Entyvio from my GI doc last week. She suggested I reasearch to figure out if I’m interested in trying as she mentioned several studies claim to indicate it helps with with cuffitis. I have intermittent cuffitis issues a several times a year. I appreciate your feedback on the medicine and interested to see how things go for you, if you continue with it. She has prescribe me with Canada suppositories for now until my MRI results are in. I’m having a hard time keeping the suppository in. Anyway, enough about me/ that. Again, thank you so much for your review so far on Entyvio. I hope the side affects subside as your body acclimates. Sending positive vibes!

When I started Entyvio, I was still in the down dosing stage of budesonide. As you said, budesonide was like a miracle drug for me too, works better than anything else I'd ever had for pouch issues.

The jury is still out for me on Entyvio since my initial results were great but that was potentially the budesonide effects still so I'll need more time before I can say for sure on the Entyvio by itself. It would be nice to hear from others as well. Good luck.

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