I know this question has been asked several times but still can’t find an answer. Looking to find anyone who has had success with Entyvio and pouhitis/inflammation? had my first infusion on 10/23/23 and have just felt awful since. Can barely do anything, been in bed going on 6 days now, headaches. Just not sure the side effects outweigh “it might help” I’m still on budesonide which is a miracle drug for me.
i know every one is different, i read the studies, but I seem to be having a hard time finding success stories for people that have inflammation/pouchitis on Entyvio.
42yrs with my pouch and this is what I have to look forward to! Not a happy camper. I never thought I’d ever say thinking about a reversal, but if biologics is all I have, the thought has crossed my mind.
Thanks for any info you can provide.