Any of you ?
Yesterday my endoscopy gave me a bad news, which I expected, as my pouchitis lately seems to be quite severe, I increased my bathroom trips and, when I don't take antibiotics (which I'll discuss with my doctor, to take them continually) have bad cramps. Another bad news is that my inflammation is extended on the pre-pouch for 10 inches (25cm); The pre-pouch ileitis is a complication quite difficult to treat and my hopes are quite low that I will really clear it out with antibiotics ..
The fact is that, albeit those findings, my quality of life was quite good; some trips more on the bathrooms and some cramps never stopped me, I continued to work and have an active life, and this is really different from the days with UC, when I didn't want to leave my home because of my incontinence.
Did any of you have the same experience ? Another fear I've got is the chance to worsen my pouchitis and pre-pouch ileitis (which seems quite bad) finally losing my pouch, getting the ileostomy and things like that..