I have a question that's been on my mind for a while now. I have an end ileostomy after my colectomy and needless to say, I think that I have a very poor outcome compared to the rest of people's experiences that I am reading. I am in the process of maybe switching surgeons as a result of my outcome and I am willing to get as much advice or input as I can. I will be having a meeting with my surgeons that I am seeing to discuss my symptoms, but I would really be grateful for some input so I can be guided in the right direction when I talk to my surgeons.
I currently have an end-ileostomy after my laparoscopic colectomy. Before surgery (pre- ulcerative colitis), when i ate food my stomach would return back to its normal size after a little bit. I could consume thousands of calories and live a healthy and active lifestyle.
With my ileostomy, when I eat food, I feel full very easily. My stomach distends quite a bit after each meal, and drinking fluid makes it sorta worse too. Sometimes I feel full hours after eating a meal as well. In fact, it is preventing me from being able to exercise and I feel unwell throughout the day. My output is fine, but I have no clue why I am feeling like this. The only thing that helps is walking a ton but I get too exhausted and lose way too much weight if I keep on walking.
I was thinking, what if this is just because I have an ostomy? Additionally, I was wondering if anyone dealt with these symptoms with an ostomy to have them go away with a jpouch.
My apologies if this post is so long and detailed. I am willing to do whatever it takes to get my quality of life back. I am 23 years old and I can not continue to live the rest of my life like this. I want to be able to continue athletics and bodybuilding like I used to. I also want to love food again which is hard to do right now.