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Hi guys,

I have a question that's been on my mind for a while now. I have an end ileostomy after my colectomy and needless to say, I think that I have a very poor outcome compared to the rest of people's experiences that I am reading. I am in the process of maybe switching surgeons as a result of my outcome and I am willing to get as much advice or input as I can. I will be having a meeting with my surgeons that I am seeing to discuss my symptoms, but I would really be grateful for some input so I can be guided in the right direction when I talk to my surgeons.

I currently have an end-ileostomy after my laparoscopic colectomy. Before surgery (pre- ulcerative colitis), when i ate food my stomach would return back to its normal size after a little bit. I could consume thousands of calories and live a healthy and active lifestyle.

With my ileostomy, when I eat food, I feel full very easily. My stomach distends quite a bit after each meal, and drinking fluid makes it sorta worse too. Sometimes I feel full hours after eating a meal as well. In fact, it is preventing me from being able to exercise and I feel unwell throughout the day. My output is fine, but I have no clue why I am feeling like this. The only thing that helps is walking a ton but I get too exhausted and lose way too much weight if I keep on walking.

I was thinking, what if this is just because I have an ostomy? Additionally, I was wondering if anyone dealt with these symptoms with an ostomy to have them go away with a jpouch.

My apologies if this post is so long and detailed. I am willing to do whatever it takes to get my quality of life back. I am 23 years old and I can not continue to live the rest of my life like this. I want to be able to continue athletics and bodybuilding like I used to. I also want to love food again which is hard to do right now.

Thank you.

Last edited by ncp2637
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Did this bloating start immediately after your end ileostomy was formed, or was there a delay (and how long)? An ostomy can sometimes empty poorly, and sometimes adhesions that form after surgery can cause things to be blocked up a bit. In either of these cases the J-pouch surgery might improve things, particularly if any problematic adhesions are lysed during the surgery. The surgeon needs to be aware of the problem. These aren’t the only possible causes.

@Scott F posted:

Did this bloating start immediately after your end ileostomy was formed, or was there a delay (and how long)? An ostomy can sometimes empty poorly, and sometimes adhesions that form after surgery can cause things to be blocked up a bit. In either of these cases the J-pouch surgery might improve things, particularly if any problematic adhesions are lysed during the surgery. The surgeon needs to be aware of the problem. These aren’t the only possible causes.

Hi Scott,

Thank you for taking the time to reply to me, I really appreciate it. So I had my surgery ~9 months ago in January. Pretty much, this started the moment after the end ileostomy was formed (done laparoscopically). I am quite surprised at this because my first surgeon is very experienced in minimally invasive surgery. So for the first couple of weeks after surgery, I experienced really significant bloating whenever I ate anything. Then once things “settled” to speak, I wake up alright in the morning, and then after each meal i feel quite bloated and distended. After my last meal in the night, I feel quite uncomfortably full. Additionally, sometimes drinking water also makes me feel quite full as well until I urinate. I am getting by with eating kinda small meals and spacing out the times I eat and drink. However, since I can’t eat at a caloric surplus, this all is leading to me remaining a very low weight.

I am definitely going to speak with my surgeons about my symptoms as well.

Last edited by ncp2637

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