hello everyone. so since my last surgerty in march i have developed a severely rigid stricture. it is so bad that in the last two months I've had it dilated three times and it has yet to do anything but cause more pain. the last dilation was a week ago after being admitted to the e.r. with blinding abdominal pain and uncontrollable vomiting.the c.t. scan showed that the stricture had become a blockage by becoming even tighter and had caused my small intestine to dilate and swell abnormalay. so another dilation under anesthesia and my doc says "well it looks like crohns" i was diagnosed with u.c. since 2007! if this dilation doesn't work then he wants to send me to Cleveland medical in Ohio....the problem is that im in so much pain i don't thank i can wait that long. im sick of being sick and ready to stop fighting. i need advice on whether i should go back to an illeostomy permanently. im 5'5" and down to 104 lbs (that's including all myvo.v. fluids im being pumped full of) im.in constant pain and can't leave the house without planning my meals and pain meds around it. im stuck in the hospital right now and even my delauded pump isn't really helping the pain. please, i know its really a decision i have to make myself but id love to hear your advice or personal experiences. thank you.
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In the meantime I'm home bound and stuck on tpn until I can eat like a normal person. Going back to Cleveland for a manometry and defecography on my birthday :P