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Hey guys,

Just wondering, what have you used for pain control that works well?. I've tried T3, Dilaudid, plain codeine, Morphine, Demerol, and Percocet 5&325mg. So far the only one that helps a little is the Percocet, but the effects burn off quickly. The rest either didn't work even at the max dose, or just made me sick. I'm seeing my doctor on Thursday and wanted to ask him for med that might work better, any suggestions? Thanks,

Eric Eeker
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some mornings there is so much pressure built up in my pouch, the valve will not open, so I have to force the catheter in causing lasting pain, and bleeding, some days it takes over an hour to get the catheter in, the pain from all that pressure and irritation is quite intense, and can last for hours. Secondly, the arthritis associated body pain, specifically, my hands, hips, knees and feet. Since my k pouch surgery last June, it's much more pronounced, seeing one of the Orthopedic surgeons I work with soon, will probably (about 99% sure) either joint replacement, or at the very least, a good scoping to clean out the joint. Between the 2, I have pain almost every day, sometimes very intense to a point where it hurts to move. Until I can get the surgery I need (but not want, I'm so fed up with surgery) I'd like to find an effective pain killer that lasts all day. I don't mind if it makes me a little dopey, I'm still off work for now, but once I return in January, I'll need to find a good pain killer that doesn't make me stoned. If I'm xraying a patient, it might help if I'm awake! Lol!
Hi Eric,
I've found that 2 tablets of Percocet 5&325 mg usually work the best for me. There were a few times in the past, though, when even the Percocet didn't work & that was when I realized something more serious was wrong & went to Emergency to get a shot of morphine. It doesn't sound right to me that it takes you over an hour to get your catheter in & I worry that you might be damaging your valve using too much force to get it in. I did go through exactly the same thing when my valve first started to move around & I pushed my catheter in too hard & it did hurt for hours afterward. Now I just gently try to push it in at different angles, not using too much pressure until it finally goes in. Usually only takes me a few minutes at most to get it in. Dr. Cohen is most accommodating when it comes to pain medication & I hope he can help you. If he has any other suggestions as to how to easily get the catheter in, I'd be interested in knowing what he suggests.
Eric Sweetie,
You should not be allowing your pouch to fill up so much at night...if you do not wake up on your own then set the alarm for 3am and Please empty out your pouch...you should not be allowing it to get so full that you cannot put the tube in...way too soon to be stressing your valve so much...Especially since it sounds like you are hurting it every morning fighting to get it to go in...
Either take a break and put yourself on fluids for a couple of evenings or put yourself on strait drain at night for about a week.
You need to give that poor valve a vacation!
Hugs and keep posting
Sharon

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