UC Complete Colectomy with ileostomy bag 2008 January
Sleeve Gastrectomy "85% stomach removed from my body" 12/08
july and August 2012 new surgeon, j pouch created, complications with stoma inverting and reconnect 3 weeks later, 10 months to get my control back.
Feb 2014 gained 25 lbs and having difficulty with my bowels
my Dr does a pouchoscopy and everything looks good, no strictures or anything but I can't go to the bathroom and the lbs are packing on Me all in my gut area.
My Dr also sends me for a CT scan. They find my small intestine and j pouch are perfect but I have some issues with my ovaries and cysts on my kidneys. 6/2014 I had a partial nephrectomy on my right kidney to remove Cancer. Clear cell renal carcinoma.
Then on 12/2014 I had a complete hysterectomy due to a large pelvic mass growing bigger and absolutely no way of knowing if I have/don't have ovarian cancer or the start of it. To many surgeries have created so much scar tissue in my abdomen area it was impossible do any kind of internal scopes.
I suffer from mental illness also, it's getting worse with each medical issue, depression, anxiety, traumas, phobias, sleep issues, PTSD, OCD. I started having night time bowel incontinence before my kidney surgery but only some days and that continued on and since my hysterectomy it's every night while I'm asleep it's like I don't even know it's happening, I dont feel it or anything and it doesn't wake me. I go to the bathroom before bed to try to make sure I'm empty and I don't eat much most days not huge meals.
I feel like my small intestine is holding on to food for along time but other thing are passing. My digestive track is a mess I have issues digesting fruits, veggies, whole wheats, lots of fibrous foods, medicines and many other things. Looks the same as it did when it went in my mouth and if I'm not careful I could cause a blockage in my intestine. Other people have UC with a j pouch and only a small intestine and have also had a sleeve surgery to their stomach and have no problems. Body isn't working the way it should.
Could I have pouchitis? Or maybe some infection in my intestine? I really hate more Drs and more tests I am tapped out. Now I'm wearing depends every night. Please help if anyone has any info. I don't know what to do!!!!!
Thea
