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When I first stopped using it on a regular basis I had bad spasms too. I only use it now before exercising. My occasional spasms are related to foods. I keep a food journal to identify current problems. I take a very small dose of valium if the spasms feel like glass is stabbing me.

More experienced j-pouchers tell me I will not have to worry about this over time. It just takes a while for our system to fully develop. Problem foods include red beets, romaine lettuce, green onions and sauerkraut.
No, you are not alone, quit taking this crap as soon as you can, it can be helpful at first but, Unless you absoluty have to take this crap get rid of it. It takes time, but your body will adjust, no, not overnight, but it will make adjustments. I have always wondered why anyone would want to "Plug" up the system & hold that toxic waste inside, do ya think it might be the reason for some infections?? remember, a clean pouch is a Happy pouch!!, If you have to empty, empty. I realise that there are those that have no choice & must take it. but for those that don't, Don't. As to the spasms, I wish I could give some advise, In my case they seemed to lessin with time, (I don't have them anymore Good Luck
I guess I am one of those who need Imodium long term. I have tried to stop it, but the frequency is high enough to interfere with normal life. But, I do need less than I did during the first few years post op.

No way am I plugged up, since my frequency is 6-10 times a day even with 4 Imodium a day and daily Vicodin. I do agree that we should not be trying to achieve the same low frequency that folks with a healthy colon enjoy (once or twice a day). I think that just promotes bacterial growth that is counter productive.

As to the spasms; yes I do notice more of a crampy sensation when I do not take Imodium. Probably has more to do with its overall effect in slowing the gut than actually being an antispasmodic. The thing about antispasmodics like Levsin and Bentyl though, is that they have side effects that are probably more troublesome than any associated with Imodium. They are in the same class as scopalomine, and can cause dizziness and a "dopey" sensation. I guess you just have to pick your poison, so to speak, and decide what inconvenience is acceptible to you.

Jan Smiler

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