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Hello everyone,

So I had quite a rough pregnancy almost six years ago. To the point where they wanted to terminate because I was dying. But, just as usual, I pulled through and was on remicaid through most of the pregnancy. I had a c-section and amongst being extremely ill and the docs threatening to do an ileostomy "temporarily" ( i have jpouch) things eventually were ok. Probably four years later, they diagnosed me with crohn's because they found three fistulas from my jpouch (abscessed). I was put back on remicaid and doing well for about 2 years. Now, yesterday I saw the docs and they scoped me, i am possibly developing antibodies against remicaid....and he asked me if my new fiance and I wanted to have children. He does not recommend it. Frowner we have talked about it and he knows my history and doesn't want to put me at risk or possible complications for the baby..but when the doctor said that, it really hit home. My fiance loves my daughter. She actually calls him "daddy" (he has been with me since she was 1yrs old) but her dad is also in the picture and we share her..we are all pretty civil surprisingly. It's just very hard because my daughter was not planned with my ex and we were never in love. I think I always dreamed of having a child with the man I love. He has been playing tough like it doesn't bother him, but last night he told me it did. He said he loves me and my daughter and that he will have to accept it, but it makes him sad. How do we deal with this? I must say that I was talking to my doctor at cleveland clinic, I drive 4 hours to see him and he has saved my life multiple times and my daughter while i was pregnant. So i do not feel that I need a second opinion. Dr. Shen is my fourth and final opinion on my jpouch problems Smiler Guess I'm just looking for support. I'm sure this is common for docs not to recommend pregnancy. Thanks everyone !
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I can't answer how to cope with the recommendations about no more pregnancies, but if you are forming antibodies to Remicade, why not switch to Humira, which is much, much less likely to induce antibody formation (fully humanized protein used, no mouse protein)?

i know there are others who have been on Humira during pregnancy without any issues. Not much known long term though, for the baby.

Jan Smiler

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