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That is pretty interesting. My situation was opposite. When I was in the hospital, I thought my only solution was to get a bag, I had already accepted that. And then a surge

When my bowel was removed, it was always the intention to be reconnected, although looking back, it’s was often said so flippantly, it was either to hide the enormity of such surgery or maybe to help encourage patients to have their diseased colon removed first as the priority and not to even think about a J pouch.

I was lead to believe; we’ll remove your bowel, give you time to recover and we’ll reconnect you in a couple of months.

In the UK, patients have to consent to surgery, despite how necessary; otherwise the Hospital has to apply to Court.

Also, removing a diseased bowel and creating a stoma, is considered general surgery; it was a Vascular Surgeon who removed my bowel etc and according to the Surgeons at St.Marks, he did a tremendous job, unless they say that to everyone.

Where as, J pouch Surgery, is specialised, hence my visit to St.Marks.

I’m also lead to belief that most UK patients, once they’ve recovered from a UC flare up which resulted in the creation of an ileostomy; they’re more than happy with the outcome and don’t wish to pursue further surgery.

The 3 Step procedures is so much better; it’s my believe that those who do experience complications, have either had the 1 or 2 step procedure.

My 2nd step was roughly 9 years later, resulting in pouch creation and surgeons where able to monitor the j pouch, test for leak etc before performing takedown 6 months later.

Dental Treatment is where the NHS and successive Governments have failed; even an episode of The Simpsons highlights this, with the Book or British Smiles.

Its so hard to find a NHS Dentist in the Uk, even though the majority of Dentist are trained by the NHS; they should be made to work solely for NHS for 10 year before opening or working for a private practice.

Private Dental treatment is so expensive in the UK and Dental Insurance is not advertised like other forms of Insurance; in fact I don’t even know if it’s available in the Uk, although I guess it is.

It’s only since the likes of the kardashians, Facebook and posting Selfies that UK attitudes to possessing a Hollywood smile are changing. 

on came and visited me in the hospital and offered me a J-pouch surgery instead of having a bag forever. He explained what it was and I was like, YES!!! I want that instead! He was the only one that offered that option to me. I am sorry that you were never offered that in the beginning, I wonder why NHS does not mention that to people there when a lot of times its beneficial??? I guess they have their own thing. 

Honestly, 3 step surgery sounds WAY LESS painful. Surgery 1: colon and rectum removal and J-pouch and stoma creation. In surgery 1: I was in pain from the colon and rectum being removed, J-pouch creation, and stoma creation. I had lots of pain all in one surgery, it was a lot of stress. Surgery 2 was the worst pain. 3 step surgery sounds a lot more peaceful. One person I talked to had a 1 step surgery!!! No way anyone should be put through that!!!

And wow that does not sound too bad at all! I wonder why the UK and Canada have a bad rep when it comes to being expensive?!?! Sounds similar to the U.S. That is proof not to believe in every rumor you hear lol. Do you guys have dental insurance plans??? That is another stereotype I hear about. 

When my bowel was removed, it was always the intention to be reconnected, although looking back, it’s was often said so flippantly, it was either to hide the enormity of such surgery or maybe to help encourage patients to have their diseased colon removed first as the priority and not to even think about a J pouch.

I was lead to believe; we’ll remove your bowel, give you time to recover and we’ll reconnect you in a couple of months.

In the UK, patients have to consent to surgery, despite how necessary; otherwise the Hospital has to apply to Court.

Also, removing a diseased bowel and creating a stoma, is considered general surgery; it was a Vascular Surgeon who removed my bowel etc and according to the Surgeons at St.Marks, he did a tremendous job, unless they say that to everyone.

Where as, J pouch Surgery, is specialised, hence my visit to St.Marks.

I’m also lead to belief that most UK patients, once they’ve recovered from a UC flare up which resulted in the creation of an ileostomy; they’re more than happy with the outcome and don’t wish to pursue further surgery.

The 3 Step procedures is so much better; it’s my believe that those who do experience complications, have either had the 1 or 2 step procedure.

My 2nd step was roughly 9 years later, resulting in pouch creation and surgeons where able to monitor the j pouch, test for leak etc before performing takedown 6 months later.

Dental Treatment is where the NHS and successive Governments have failed; even an episode of The Simpsons highlights this, with the Book or British Smiles.

Its so hard to find a NHS Dentist in the Uk, even though the majority of Dentist are trained by the NHS; they should be made to work solely for NHS for 10 year before opening or working for a private practice.

Private Dental treatment is so expensive in the UK and Dental Insurance is not advertised like other forms of Insurance; in fact I don’t even know if it’s available in the Uk, although I guess it is.

It’s only since the likes of the kardashians, Facebook and posting Selfies that UK attitudes to possessing a Hollywood smile are changing. 

Last edited by strange
@strange posted:

When my bowel was removed, it was always the intention to be reconnected, although looking back, it’s was often said so flippantly, it was either to hide the enormity of such surgery or maybe to help encourage patients to have their diseased colon removed first as the priority and not to even think about a J pouch.

I was lead to believe; we’ll remove your bowel, give you time to recover and we’ll reconnect you in a couple of months.

In the UK, patients have to consent to surgery, despite how necessary; otherwise the Hospital has to apply to Court.

Also, removing a diseased bowel and creating a stoma, is considered general surgery; it was a Vascular Surgeon who removed my bowel etc and according to the Surgeons at St.Marks, he did a tremendous job, unless they say that to everyone.

Where as, J pouch Surgery, is specialised, hence my visit to St.Marks.

I’m also lead to belief that most UK patients, once they’ve recovered from a UC flare up which resulted in the creation of an ileostomy; they’re more than happy with the outcome and don’t wish to pursue further surgery.

The 3 Step procedures is so much better; it’s my believe that those who do experience complications, have either had the 1 or 2 step procedure.

My 2nd step was roughly 9 years later, resulting in pouch creation and surgeons where able to monitor the j pouch, test for leak etc before performing takedown 6 months later.

Dental Treatment is where the NHS and successive Governments have failed; even an episode of The Simpsons highlights this, with the Book or British Smiles.

Its so hard to find a NHS Dentist in the Uk, even though the majority of Dentist are trained by the NHS; they should be made to work solely for NHS for 10 year before opening or working for a private practice.

Private Dental treatment is so expensive in the UK and Dental Insurance is not advertised like other forms of Insurance; in fact I don’t even know if it’s available in the Uk, although I guess it is.

It’s only since the likes of the kardashians, Facebook and posting Selfies that UK attitudes to possessing a Hollywood smile are changing. 

Do patients have to still consent to surgery when they are too sick to consent or not able to consent? Sounds like peoples parents/guardians cannot consent for them either.

And wow!! A vascular surgeon did yours??? I could not imagine! I did not even think they are even capable of something like that, that sounds like a big risk lol. Here in the U.S, its either general or colon surgeons that do something like that as far as I am aware of. Mine personally was done by a colon surgeon and it was Robotic Assisted. Do you guys have Robotic Assisted surgeries too? And was yours done robotically???

And yeah, that happens here in the U.S too. A lot of people do not like having multiple surgeries because after a while its mentally and physically draining. I definitely understand why people choose to have an end ileostomy to avoid all of that drainess. I was 22 when I had everything done so I did not know about how draining all of that stuff can be on the body until I went through it. I do not know if I would have done things differently had I known that. But I do love where I am at right now with my J-pouch. 

And yeah, most people that have a mucosectomy done, typically have more problems too. Did you have a mucosectomy done or do you still have your rectal cuff??? I am not sure how the U.K does it, we have a mixture of that at the U.S. I personally have a rectal cuff. 

Do you think the dental situation will get better in the NHS system or the UK system???

Do patients have to still consent to surgery when they are too sick to consent or not able to consent? Sounds like peoples parents/guardians cannot consent for them either.

And wow!! A vascular surgeon did yours??? I could not imagine! I did not even think they are even capable of something like that, that sounds like a big risk lol. Here in the U.S, its either general or colon surgeons that do something like that as far as I am aware of. Mine personally was done by a colon surgeon and it was Robotic Assisted. Do you guys have Robotic Assisted surgeries too? And was yours done robotically???

And yeah, that happens here in the U.S too. A lot of people do not like having multiple surgeries because after a while its mentally and physically draining. I definitely understand why people choose to have an end ileostomy to avoid all of that drainess. I was 22 when I had everything done so I did not know about how draining all of that stuff can be on the body until I went through it. I do not know if I would have done things differently had I known that. But I do love where I am at right now with my J-pouch. 

And yeah, most people that have a mucosectomy done, typically have more problems too. Did you have a mucosectomy done or do you still have your rectal cuff??? I am not sure how the U.K does it, we have a mixture of that at the U.S. I personally have a rectal cuff. 

Do you think the dental situation will get better in the NHS system or the UK system???

If a patient is admitted as emergency and severely injured or unconscious; then yes, the Hospital will act in the best interest of the patient without consent.

Parents, guardians and a next of kin can also give consent but should a patient refuse treatment or surgery; the Hospital can’t just ignore a patients wishes and ask the next of kin etc.

The Vascular Surgeon only removed my bowel and created the end ileostomy and both he and his female surgical assistant were very capable; it worked without complications for 9½ years and the Surgeons at St Marks were impressed by their handiwork.

My ileostomy was an emergency and the Vascular Surgeon was the only one on call at short notice, who was capable of performing such a procedure and I was too ill to care and just wanted what was making me so ill out of me.

My J pouch was created by the specialist at St.Marks.

Yeah. since the early 2000 Robotic Assisted Surgery has been available at NHS Hospitals, even at St.Marks although I’ve never heard of it being used for J pouch surgery.

I’ve no idea whether I have a rectal cuff or not or which technique is used over the other, so I guess it’s the same as the U.S; a mixture of either technique depending on circumstances or maybe a Surgeons preference.

With the Coronavirus fallout, an expected 2nd wave, a possible winter flu epidemic and separating from EU, it’s highly unlikely the UK Dental System will improve any time soon.

Otherwise: I too love where I am with my J-pouch.

@strange posted:

If a patient is admitted as emergency and severely injured or unconscious; then yes, the Hospital will act in the best interest of the patient without consent.

Parents, guardians and a next of kin can also give consent but should a patient refuse treatment or surgery; the Hospital can’t just ignore a patients wishes and ask the next of kin etc.

The Vascular Surgeon only removed my bowel and created the end ileostomy and both he and his female surgical assistant were very capable; it worked without complications for 9½ years and the Surgeons at St Marks were impressed by their handiwork.

My ileostomy was an emergency and the Vascular Surgeon was the only one on call at short notice, who was capable of performing such a procedure and I was too ill to care and just wanted what was making me so ill out of me.

My J pouch was created by the specialist at St.Marks.

Yeah. since the early 2000 Robotic Assisted Surgery has been available at NHS Hospitals, even at St.Marks although I’ve never heard of it being used for J pouch surgery.

I’ve no idea whether I have a rectal cuff or not or which technique is used over the other, so I guess it’s the same as the U.S; a mixture of either technique depending on circumstances or maybe a Surgeons preference.

With the Coronavirus fallout, an expected 2nd wave, a possible winter flu epidemic and separating from EU, it’s highly unlikely the UK Dental System will improve any time soon.

Otherwise: I too love where I am with my J-pouch.

Okay, I am glad to hear that. I am glad everybody has their own voice when it comes to their health. Nothing is good about being forced to do something.

I am glad everything worked out with those surgeons that did your bowel removal. I never knew those kind of doctors can do stuff like that, but then again, UK is known for being smart lol.  I am highly impressed myself lol.

Too bad you had to wait 9 1/2 years to have the J-pouch surgery done, but at least in the end you got what you wanted and it all worked out. A lot of people that had the ileostomy that long would keep it. A lot of people say,"If it aint broke, do not fix it". You are pretty brave for taking a chance with something new. A lot of people would not do that.

I hope they start using the Robotic surgery for J-pouches soon, I hear getting j-pouches done robotically have a significantly higher success rate than hand-assisted surgeries. Robots tend to be more accurate I hear.

Yeah most people nowadays have a rectal cuff in the U.S. A rectal cuff makes things easier when it comes to the anastomosis and having more freedom with continence. Older surgeons tend to do it without the rectal cuff -and people that had colon cancer typically do not get a rectal cuff either since the cancer can come back that way, The downside of having a rectal cuff if you had Ulcerative Colitis is that you can get UC in the rectal cuff area making it be cuffitis, I never had that thankfully. People without a rectal cuff typically can have more problems. And the islands of the rectal cuff can grow back over time anyway. Pros and cons to everything unfortunately lol. 

Hopefully everything with the dental system will get better over time. I love how you guys call meals. You guys say Breakfast, Dinner, and Tea. I love that hahaa. Over here we say, Breakfast, Lunch, and Dinner. 

Wow, I love British history! Its soo cool! I learned soo much from you. It must be perfect to be there. At Tea time do you guys eat desserts or actual meals??? And do you think Americans have an accent???

Of course Americans have an accents; an American accent, what else.

Yeah, Tea Time is our evening meal; the main meal of the day after Dinner, usually around 6pm and for some, especially myself, also includes a desert.

 

I can’t help but feel, that some of your questions are taking the Mickey.  

@strange posted:

Of course Americans have an accents; an American accent, what else.

Yeah, Tea Time is our evening meal; the main meal of the day after Dinner, usually around 6pm and for some, especially myself, also includes a desert.

 

I can’t help but feel, that some of your questions are taking the Mickey.  

I was asking real questions that I wondered about. I never meant to offend anyone, that is not apart of my character and I like talking to you, I would never try to hurt someone.

@strange posted:

Of course Americans have an accents; an American accent, what else.

Yeah, Tea Time is our evening meal; the main meal of the day after Dinner, usually around 6pm and for some, especially myself, also includes a desert.

 

I can’t help but feel, that some of your questions are taking the Mickey.  

Also, I was complimenting your country a lot and calling it a perfect place. Why would I do that if I was trying to make fun of you, that makes no sense. 

Well, I am sorry you feel that way, I was asking questions I always wondered about and I was excited to finally get answers, I never thought they were weird, but thanks for answering my questions anyway. 

Your questions aren’t weird in general, just a little strange and somewhat naive.

 Not the kind of questions normally asked on a forum, which focuses on issues revolving around J pouch surgery etc.

 

 

Last edited by strange

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