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I used wet wipes initially, mainly because it was recommended by the Hospital, as well as being suggested within most of the j pouch literature I read; although without making a conscious decision, I slowly reverted to using toiler paper, although I still keep wet wipes on hand, as they’re useful for other tasks.

I’ve never endured butt burn either, so it can’t be a consequence of using toilet paper.

Do the regular users of wipes, dispose of them into a bin or flush them into the ocean ?

Last edited by Former Member
@Former Member posted:

I used wet wipes initially, mainly because it was recommended by the Hospital, as well as being suggested within most of the j pouch literature I read; although without making a conscious decision, I slowly reverted to using toiler paper, although I still keep wet wipes on hand, as they’re useful for other tasks.

I’ve never endured butt burn either, so it can’t be a consequence of using toilet paper.

Do the regular users of wipes, dispose of them into a bin or flush them into the ocean ?

Definitely a trash can

@Former Member posted:

Just not very nice;

A bin full of soiled wipes doesn’t  sound very pleasant at all; not a problem it wipes been used to remove make up or anything else but they haven’t; would of thought it doesn’t smell too good either.

 

Lol I more than understand that. It is not as bad as it sounds though. It does not stink at all, I sometimes do not empty the trash in my bathroom for weeks, I always fill it to the very top before I take it out- still does not smell.  I do not really have any company over but if I did I would take out the trash in there more often since it would not be a pretty sight lol. I use store plastic bags.  But if toilet paper is working for you and you do not have any butt burn with it then toilet paper is great! Its also cheaper than buying wet wipes. I but 800 wipes for about $12-$14 about every 4-6 months, I go 10x a day or more so toilet paper is definitely a big money saver, if I could handle it, I would definitely just use toilet paper too. 

Last edited by Lauren Of Emerald City

I only go 3 or maybe 4 times per day, so maybe that’s why I don’t  suffer from butt burn.

Although, I wouldn't like to be disposing of toilet wipes in the bin, I’d probably be putting then into nappy sacks then into the bin, which is probably as bad as flushing them into the ocean.

When disposing of my stoma appliance, I had no choice but place them in the bin, although I used a separate bin just for my stoma appliance and they were placed into the scented nappy sacks, which didn’t seem so bad; and I did this for 9½ years.

Last edited by Former Member
@Former Member posted:

I only go 3 or maybe 4 times per day, so maybe that’s why I don’t  suffer from butt burn.

Although, I wouldn't like to be disposing of toilet wipes in the bin, I’d probably be putting then into nappy sacks then into the bin, which is probably as bad as flushing them into the ocean.

When disposing of my stoma appliance, I had no choice but place them in the bin, although I used a separate bin just for my stoma appliance and they were placed into the scented nappy sacks, which didn’t seem so bad; and I did this for 9½ years.

You seem like you are a very clean, organized person lol. 

@Former Member posted:

I only go 3 or maybe 4 times per day, so maybe that’s why I don’t  suffer from butt burn.

Although, I wouldn't like to be disposing of toilet wipes in the bin, I’d probably be putting then into nappy sacks then into the bin, which is probably as bad as flushing them into the ocean.

When disposing of my stoma appliance, I had no choice but place them in the bin, although I used a separate bin just for my stoma appliance and they were placed into the scented nappy sacks, which didn’t seem so bad; and I did this for 9½ years.

You had a stoma for 9 1/2 years before getting a J-pouch???

You had a stoma for 9 1/2 years before getting a J-pouch???

Yep, I had the stoma for 9½ years.

Was initially diagnosed and treated for UC and prior to surgery, I was promised reconnection within a couple of months.

However, some months after Surgery, Pathology reports came to the conclusion I was actually suffering from Crohn’s, therefore the possibility of reconnection wasn’t an option.

Although, after 9 years of not having any flare ups and not taking any meds to treat or prevent flare ups, it was decided my condition was Indeterminate Colitis; meaning it wasn’t a definitive diagnosis but more than likely, not Crohn’s; therefore, the possibility of J pouch surgery was again an option; and I took it.

@Former Member posted:

Yep, I had the stoma for 9½ years.

Was initially diagnosed and treated for UC and prior to surgery, I was promised reconnection within a couple of months.

However, some months after Surgery, Pathology reports came to the conclusion I was actually suffering from Crohn’s, therefore the possibility of reconnection wasn’t an option.

Although, after 9 years of not having any flare ups and not taking any meds to treat or prevent flare ups, it was decided my condition was Indeterminate Colitis; meaning it wasn’t a definitive diagnosis but more than likely, not Crohn’s; therefore, the possibility of J pouch surgery was again an option; and I took it.

How do you like J-pouch life??? Do you like it better than ostomy life??? And did you have to get pouchoscopys over the 9 1/2 years even though you were not connected???

Yeah, even though I endure bouts of fatigue and a disturbed sleep pattern; life with a J pouch is absolutely wonderful.

100 trillion times better; especially as I don’t need to carry supplies, have to empty my bag every two hours or be changIng my appliance every few days.

In fact, I’ve not been into a disabled or public Toilet for years, it’s so long ago, I can’t even remember.

Although, more importantly, I don’t have a bag hanging from my abdomen and I can sit around in my boxer shorts without worrying whether the bag can be seen, even though I’m all alone.

Also, I can look at my self in a full length mirror, whilst wearing just my skin tight boxer shorts, without the top of the bag staring right back at me.

Yeah, when I had the stoma; every three years, I had to have what is called a sigmoidoscopy, to check my back passage (so to speak) for Cancer, inflammation and signs of Colitis (Proctitis)

During the 9½ years; I didn’t have a pouch; my large bowel (Colon) had been removed and an end ileostomy was created.

I only had my pouch created during 2014 as part of my J pouch surgery.

My takedown was during 2015 and since 2016, I’ve been discharged from the care of the Hospital that created my J pouch: and they believe, pouchoscopies aren’t necessary, until symptoms arise which warrant further investigation.

Last edited by Former Member

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