I  have been having these symptoms intermittently, for years. It has been much worse of late!

 I’ve had an SPouch, created in 1990, and then a JPouch, constructed in 2015, due to an “expired” SPouch

My symptoms:  

It feels like my body is “starving” in the morning and although it is hard to eat because of these symptoms I do my best to do so, as frequently as possible, and I drink as much as I am able to as well.  Usually after lunch it starts to improve.   I think it is because the nutrition is finally enough, for my symptoms to begin to dissipate.   

Because of my short gut, I’m feeling that it might be dehydration as well as lack of nutrients from not eating from suppertime until breakfast    I don’t eat before bed or drink much as doing so reduces and sometimes totally eliminates accidents during the night.  

This is becoming a huge problem of late!   I have so much to do in my life and I’m falling way behind, because I’m not able to do much at all for 6-8 hours at least out of my day.  

I’m hoping some of you have experienced this same frustrating problem and have found some things that have helped, that can be shared on here.

 

 

Original Post

I think you have to hydrate before bed, even though it creates other problems. Your challenge then is to work out solutions to those downstream problems that don’t involve dehydrating yourself. For example, I take Lomotil at bedtime to minimize accidents or sleep interruptions. I take it *only* at bedtime to ensure that it’s most effective when I need it most. I include psyllium with dinner to help bulk up whatever is left in my system overnight, to minimize the risk of a problem, by providing a “cork” for the fluid that will follow later. A *small* fatty meal at bedtime helps some folks - for example, a spoonful of peanut butter. Some people take precautions like adult undergarments or a pad under them in bed. These last things are unpleasant steps to have to take, but they are a step up from intentional dehydration.

Good luck!

D.D...... I experience similar as yourself; not so much a fog but a level of fatigue which never seems to lift.

I believe our symptoms could be a salt deficiency; either we must add more salt to our diet or more potassium, maybe both.

I’ve even been referred to the Endocrinology Dept of my local Hospital, had various blood test which reveal nothing out of the ordinary. 

 

Once our colon is removed, we no longer have the ability to absorb fluid and salt from our waste whilst we sleep; which in my opinion, is exacerbated by the creation of the J pouch.

 

 

Scott F posted:

I think you have to hydrate before bed, even though it creates other problems. Your challenge then is to work out solutions to those downstream problems that don’t involve dehydrating yourself. For example, I take Lomotil at bedtime to minimize accidents or sleep interruptions. I take it *only* at bedtime to ensure that it’s most effective when I need it most. I include psyllium with dinner to help bulk up whatever is left in my system overnight, to minimize the risk of a problem, by providing a “cork” for the fluid that will follow later. A *small* fatty meal at bedtime helps some folks - for example, a spoonful of peanut butter. Some people take precautions like adult undergarments or a pad under them in bed. These last things are unpleasant steps to have to take, but they are a step up from intentional dehydration.

Good luck!

Hi Scott

i took your advice very seriously and am happy to report that after a few days of no coffee in the a.m. and more fluids during the day, I am feeling much better.  

strange posted:

D.D...... I experience similar as yourself; not so much a fog but a level of fatigue which never seems to lift.

I believe our symptoms could be a salt deficiency; either we must add more salt to our diet or more potassium, maybe both.

I’ve even been referred to the Endocrinology Dept of my local Hospital, had various blood test which reveal nothing out of the ordinary. 

 

Once our colon is removed, we no longer have the ability to absorb fluid and salt from our waste whilst we sleep; which in my opinion, is exacerbated by the creation of the J pouch.

 

 

I did not know about the colon's function regarding salt, but I do know that I often crave salt.    My worst time is the a.m. and coffee definitely was making it much worse.  I think I need to try sipping on water during the night though, as when I wake during the night I have dry mouth.  

 

D.D..... if after following SCOTT’s advice and consuming more fluids has made a difference; then it maybe worth making and drinking the St Marks emix hydration solution a couple of times per week.

I suggest this often on this forum but I tend not to adhere to my own advice, which I should, although for some reason, when feeling fatigued, it’s difficult to motivate myself to make the emix solution even though I know I need it.

 

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