I've posted a bit lately on this. I have been struggling with chronic, often severe pelvic pain for a number of years that was suspected to be endometriosis. I finally had an MRI which was perfectly clear, so endo is the only option since it is "invisible" other than in surgery, and I have responded somewhat to the hormone treatments. I was finally informed today by my gynecologist that surgery is impossible because of my J pouch, and I will have to learn to live with chronic pain. He basically outright refused to do it because it would cause problems with the bowel and be impossible to get it all with all the J pouch scar tissue, so would be a lot of risk for very little value. I am so upset--it's like having colitis again in that your life is taken up by disease. I also don't understand as I thought there were a lot of you on here who have had surgery for endometriosis, or other pelvic surgery, despite your J pouches. If you have any thoughts or experience on this, please let me know.
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