I am at my wits end, I just joined this support group today in hopes of some advice. Here is a little history. I had a total protocolectomy with a J pouch in 2005. I haven’t done well with this this surgery. I have had multiple bowel obstruction and Pouchitis twice.
Currently I am having trouble eating. As soon as I eat I have diarrhea and abdominal cramping and it does not matter what I eat. My doctor has placed me on various medications to help with the diarrhea and cramping which does very little. The doctor seems to think I have irritable pouch syndrome. It has become really bad I have loss weight and just plain tried. I am scheduled for an endoscopy at the end of this month. It was so bad I went to the Emergency Dept. this weekend the doctor placed me on Flagyl it is really not helping. It all has to do with eating. I have gotten to the point where I don’t want to eat for fear of pain and discomfort.
Has anyone ever experienced something like this. Thanks for any advice you are willing to share.