My daughter had a total colectomy in 2009 and also has a kidney transplant. She has been having difficulties staying hydrated and has been hospitalized many, many times for dehydration. No one has even really mentioned the fact that she doesn't have a large intestine to absorb any of the water that she drinks. She is supposed to drink 2 liters a day, but rarely can drink that much. I am currently talking with her and her healthcare team about a g-tube. She is 16 years old and does not want one. My concern is that her kidney will continue to suffer damage if she keeps on this track and she'll lose it, placing her on dialysis. I really think this could change her life!
I guess my questions are: Does anyone have tricks to staying hydrated with a j-pouch? Does anyone have a g-tube to help with hydration with a j-pouch?
I would just die if she lost this kidney (it is mine and I don't have another one to give her) because of hydration issues.