I’ve had my pouch for around 8 years and have struggled with pouchitis for the majority of that time. I’ve had a call with my nurse following a recent camera test on my pouch and have just been diagnosed with cuffitis following analysis of biopsies by a histologist
im responding to prednisolone suppositories but always seem to flare again when I taper off. I’ve been told I can’t rely on them forever and if I flare again this time will need to be referred to a surgeon to look into my options. These include permanent stoma or a pouch resection. My question is has anyone had cuffitis and achieved long term remission? Or has anyone had a pouch resection? And can they give me any information on the process and recovery etc.
Any information would be much appreciated
(based in the UK)