I'm 3 or 4 months into the Cipro / flagyl routine and am having fair results. I did 2 weeks of cipro, was much better and then crashed. Turns out I was invaded by c. diff. Did a 2 week course of flagyl to control the c.diff.and was somewhat better but deteriorated yet again. Had a flex sig done and was diagnosed w/ pouchitis. Surgeon put me back on cipro (reduced dose, 500mg once per day as opposed to twice daily during first course) and a probiotic regimen.
I've reached an equilibrium of sorts. Every 2-3 days, I have a spell of urgency and moderate cramps. these spells last about 4-8 hours. They're annoying, but not catastrophic. The real problem I'm having is with fatigue. I can get myself going, but never seem to be able to get out of second gear and need at least 1 nap a day.
I'm hoping to benefit from the group's experience on 2 questions. What have people found with the sorts of symptoms like I'm having and what have you done about them? Second, at what point have any of you gone from seeing your surgeons to seeing a medical doc, either an infectious disease person or a GI?