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Hi - I am at week 30 + so far this baby's been taking it easy on my pouch + IBD Smiler Hubbie + I have started discussions about private cord blood banking. Wanted to get some opinions from others with auto-immune issues on this decision. Do you think potential cord blood treatments for IBD justify the $2-4K?
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The biggest issue with cord blood banking is that the overwhelming majority of diseases that need to be treated with a cord blood transplant have a genetic component... thus, you don't want your own cord blood back that has the faulty gene that allowed the disease to occur in the first place, you need someone else's cord blood.

Second, most people are more familiar with bone marrow transplants/donation, where it can be quite difficult to find a match and your best chance for a match is a sibling. That is not true with cord blood transplants. The criteria for a cord blood match is not nearly as strict and it is much easier to find a match from a public cord blood bank.

Finally... much research is being done on harvesting and using stem cells from other parts one one's body. Cord blood is not the only place to get stem cells. There is one website that I know of where a guy had a stem cell transplant from Crohn's where stem cells were basically filtered out of his own bloodsteam and transplanted back into him- here is his website .http://www.transplantforcrohns...plant_Procedure.html

IMO, private cord blood banking is basically a scam that plays off parents' fears.
I agree with Kate. My friend who is an OB said that something like 70% to 80% of the cord blood collected is unusable for one reason or another, usually mishandling during collection and/or on its way to storage. And even if it is in that small percentage that is usable, they want cord blood from a healthy child, not the one that gets sick.

The better option is supposed to be public donation and I've also heard of delayed cutting of the cord, but being that I've had one and I'm done, I haven't researched it.

We were interested when I was pregnant but upon researching found that it wasn't all that it was cracked up to be. And if anyone reading this has a doctor pushing for it, ask if they have a financial stake in any companies that provide the service or if they receive any compensation from the companies, as my OB friend suggests. And then find yourself another doctor because the answer is probably yes.

Sorry to sound so negative. Relax and enjoy the last months of your pregnancy!

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