Just diagnosed with very mild pouchititis.  I believe I've been living with it for at least several years already, it doesn't cause much urgency or frequency...  It's been 7 years since my last pouchoscopy and finally made it in.  

Anyways, after the exam I was under the impression I would take 1 week of flagy and 1 week of cipro for a total of two weeks.  However upon reading the bottles, it says take cipro for first week of every month and flagly third week of every month.  My last doctor, years ago now, just had me do two weeks of one or the other.  But I guess one week on, one week off of two types is another method?

So I take it I'm expected to permanently take antibiotics now, based on description of EVERY month, or perhaps there will be a follow up in a month and it will be decided to continue or not??  Still awaiting biospy results so I'm thinking I will get a notice to schedule follow up once I receive those results.

Just didn't feel like I've reached the point of permanent antibiotics already, since it's been about 4-5 years since I've even taken any.




Original Post

Don’t ever go solely by instructions printed on a medicine bottle. Call your doctor to clarify how you should take any medication if there is any question. It may be premature to be on permanent antibiotics if you are relatively asymptomatic. On the other hand mild pouchitis can deteriorate over time if you don’t stay on top of things. Now that some inflammation has been seen you should be scoped more regularly as that will determine how your treatment should be adjusted over time.

I am on a permanent antibiotic rotation but at one point was going on and off and becoming more and more symptomatic when I went off. You may reach that point but doesn’t sound like you are there yet.

I also think there’s no current reason to plan on permanent antibiotics. It might be worth calling your doctor to clarify. The biopsy results are unlikely to be significant, but might also be a fine time for a discussion. A single course of antibiotics may be sufficient, and is usually what gets tried first. Because it’s been going on for a while, your doctor may have an aggressive course in mind. The prescription might have been written so it’s easy to escalate if necessary, but it sounds like you need to understand the plan better.

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