I have had some unusual events happen over the past year and I was hoping I could get some guidance from someone who may have experienced the same.
Long story short, I hade my takedown 3 years ago (right before covid). My first scope since takedown happened last month after begging my doctor to take a look because I have been going to the bathroom more often than I felt was normal (10 times a day, 4-5 overnight). I also requested antibiotics - thanks to this group for the information! I know - I need a new doctor - I am working on that.
Antibiotics worked like a charm, but then once I came off them symptoms were back such as urgency and frequency and gas. However, in the findings of my scope, my doctor said I did not have pouchitis but moderate to severe cuffitis. The confusing part is why would antibiotics work on cuffitis? I had no idea I had inflammation in my rectum until he told me from the scope as my symptoms with UC are not present now - thank god. So he prescribed me mesalamine both oral and rectal. The rectal made me incontinent and oral makes me bleed, so I stopped taking them and decided to change my diet and eliminate dairy and tighten up the reigns on gluten. I tried all the holistic diets with UC and they never worked, however this time my symptoms are soooo much better. Barely any urgency, and I am sleeping so much better at night. When I do seem to eat dairy, my rectum hurts.
So - the question is do I nix the drugs and just try diet? My doctor is concerned of not getting the inflammation under control, however if we never did the scope we never would have known it was there. I also believe the inflammation never went away since takedown because I almost always used to flare in my rectum, and there was inflammation there during takedown. Does any one have any insight on this situation or have dealt with this before?